Damm once again
January 4, 2017 at 2:25 pm
I got into the hospital once again it seems my third onset is ongoing waiting too hear what they are going to do about it.
Xoxo from Iceland
January 4, 2017 at 4:12 pm
GBS usually peaks in 4-6 weeks and then begins to improve. GBS is almost always a one-time event and will rarely reoccur. However, GBS can return as RGBS or in the chronic form of CIDP. There are other peripheral neuropathies/variants too that are similar. Here is a summary about the various autoimmune disorders:
The length of time it takes to heal from GBS varies greatly by individual and the severity of demyelination. Residual symptoms may last for years after most of the healing is done.
If your autoimmune system is still producing antibodies that attack “self”, you may want to ask your doctor about trying Plasma Exchange (PE) treatments. This is the primary way of removing those antibodies from your system. IVIg, SCIg, and often Prednisone, will stop your autoimmune system from producing more of those antibodies, but won’t remove what’s there, that’s the job of PE. Another newer option is Rituximab. You can search these forums for more info about it.
Here is May 2016 article that covers the disease well. It may give you and your doctors some ideas of how to best help you:
Another good publication is here:
I hope you get the treatment you need and get out of the hospital soon.
January 4, 2017 at 6:16 pm
Thank you for this I will get spinaltap tomorrow and some more test. I was talking about PE but they did not want to do that and gave my ivig instead, that was 10 years ago. I going to show them this. And thanks again:)
Xoxo from Iceland
You must be logged in to reply to this topic.