Reply To: some update from Iceland

November 27, 2013 at 6:59 pm

Helga, are you saying that you think your GBS is still active after 7 years? If so, it is probably CIDP. If not, it is not uncommon for many of us to have residual symptoms many years after the onset of GBS.

A bad cold can, in very rare circumstances, trigger a recurrence of GBS-like symptoms. This is because the immune system has already learned how to make certain anti-bodies that could again wrongly attack the nerve fibers.

I am 6 years post onset (GBS then CIDP/MFS) and still have paralysis, numbness and tingling. I had vision loss and got Diabetes from taking Prednisone. Surgery fixed my vision loss, but I am still diabetic. It took 2 years before I could use a computer again.

You should see your neurologist if you think the disease has become active again. Perhaps s/he would recommend some treatments (IVIg, PE, etc) to help you get better.