T

Your Replies

  • T
    November 21, 2019 at 4:43 pm

    I was on Privigen IVIg fortnightly and gabapentin 3 times a day now on Hizentra SCIg weekly and gabapentin 3 times a day, suspected allergy to Hizentra the more I have a red rash is developing at sites and nearby areas. Finding Gaberpentin is not working well anymore and had bad reactions to Lyrica. I am allergic to prednisone so I can’t take it as for Cellcept not heard of its use here in Australia for CIDP.

    T
    November 19, 2019 at 1:51 am

    FRANCES SAKANAI you have described the same pain I have your neurologist seems to have the same option as mine but CIDP manifests it self differently in others with somethings being similar I think the neurologist maybe stuck in text book that the symptom must be completely the same.
    I thank my neurologist skills to diagnose the CIDP it took 18 years to finally have someone to investigate properly.

    T
    November 18, 2019 at 11:34 pm

    FRANCES SAKANAI you have described the same pain I have my neurologist seems to have the same option as mine but CIDP manifests it self differently others with something being similar I think the neurologist maybe stuck in text book that the symptom must be completely the same.
    I thank my neurologist skills to diagnose the CIDP it took 18 years to finally have someone to investigate properly.

    T
    November 17, 2019 at 2:19 am

    I was on Privigen ivig for 12 months for CIDP every 2 weeks didn’t get any energy boost and have been moved to Hizentra scig every week for the last 8 weeks and still have not experienced this energy boost people talk about.

    T
    October 29, 2019 at 4:07 am

    Hi from Australia , I was diagnosed with CIDP 2018. Was miss diagnosed for close to 18 years. I started out with Ivig can’t have Prednisone due to allergy. I am on
    Gabapentin 600mgx3 aday which is not working and have been moved to Hizentra Scig every week at present I am going through major relapse.

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