Ausvoltz

Your Replies

  • Ausvoltz
    November 18, 2019 at 11:34 pm

    FRANCES SAKANAI you have described the same pain I have my neurologist seems to have the same option as mine but CIDP manifests it self differently others with something being similar I think the neurologist maybe stuck in text book that the symptom must be completely the same.
    I thank my neurologist skills to diagnose the CIDP it took 18 years to finally have someone to investigate properly.

    Ausvoltz
    November 17, 2019 at 2:19 am

    I was on Privigen ivig for 12 months for CIDP every 2 weeks didn’t get any energy boost and have been moved to Hizentra scig every week for the last 8 weeks and still have not experienced this energy boost people talk about.

    Ausvoltz
    October 29, 2019 at 4:07 am

    Hi from Australia , I was diagnosed with CIDP 2018. Was miss diagnosed for close to 18 years. I started out with Ivig can’t have Prednisone due to allergy. I am on
    Gabapentin 600mgx3 aday which is not working and have been moved to Hizentra Scig every week at present I am going through major relapse.

1 2 3 4