While this is an older thread I wanted to share how I found my neurologist in Charlotte. I asked my in home infusion care provider, Option Care, if they had anybody they would recommend. They hooked me up with a younger doctor who I feel is very good. She suffers from an autoimmune condition herself, and has a more hands on understanding of exactly the kinds of pain that her patients describe. I don’t want to give her name on the open forum, but I’d happily share in a private message with forum staff. She’s not a Center of Excellence care provider, but so far in she’s maintained my care as it was before I moved from Chicago to Charlotte, and was receptive to moving me to SCIG when I started having issues with vein access for the IV infusion.
In the past 7 months I’ve been moved from Gammaguard, to Octogam, to Gammaplex. My neuro says she was given a “bump list” and was directed to re-evaluate patients for absolute need. I was moved from every four weeks to every six, but remain approved for treatment with IVIG. I don’t have more detail on who she got the list from, I didn’t feel it was my place to ask a question that seemed above my pay grade as a patient.
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