Tinglytoes

Your Replies

  • March 13, 2018 at 2:17 pm

    I have

    IVIg Changed My Life!

    And

    GBS/Cidp Warriors Worldwide.

    Sorry for the late reply been off here on a personal leave.

    March 13, 2018 at 2:15 pm

    I have cidp and I find I am always sweating. I get so embarrassed.

    March 13, 2018 at 2:12 pm

    Honestly I take melatonin and it completely relaxes mine. I have also heard magnesium and tonic water help.

    March 13, 2018 at 1:39 pm

    Hang in there mama bear!
    I can not say I know what it is like to have a child with CIDP but I was the child with CIDP. As far as i can remember I never had any esophageal issues. I hope you are all coping well with her diagnoses and please don’t hesitate to contact me if you (or her) want to talk! I know I could relate on being a teenager with cidp and would love to help!