New to forum

This topic contains 3 replies, has 3 voices, and was last updated by  Tinglytoes 3 months, 1 week ago.

Viewing 4 posts - 1 through 4 (of 4 total)
  • Author
    Posts
  • #113912

    Tinglytoes
    Participant

    Not sure if this is allowed but I totally hope it is😊

    Hi my name is Jessica aka Tinglytoes (hehe get it). I am a 31 year old wife and mother to a wonderful man and two amazing kids.

    I was diagnosed with CIDP in 1997 at the wonderful age of 11. I went through absolute hell from the time of diagnosis to the time I left highschool (I was bullied over my illness).

    In my years of living with CIDP I have created a booming support group on Facebook for IVIG patients and I am always looking for a way to give back and help how I can. Hense PART of the reason I am here (I love this forum).

    I want to help.
    I don’t mind if some one was diagnosed yesterday or 30 years ago I know how hard it can be to relate to people with cidp. For newly diagnosed or parents of children who have been diagnosed with CIDP I want to be able to share my stories with you to help you cope along the way and be there to talk.

    Please feel free to contact me here or at my personal email

    cidp.warrior.princess@gmail.com

    #113918

    GH
    Participant

    Welcome to the forum! It appears you have some unique experiences to bring to the discussion.

    #113930

    jk
    Participant

    Yes, welcome and thank you. How do ‘we’ find the facebook group?

    #114008

    Tinglytoes
    Participant

    I have

    IVIg Changed My Life!

    And

    GBS/Cidp Warriors Worldwide.

    Sorry for the late reply been off here on a personal leave.

Viewing 4 posts - 1 through 4 (of 4 total)

You must be logged in to reply to this topic.