Susan L Heureux
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July 14, 2016 at 12:31 pm
Hello
Hello fellow GBS friends. I am new to the site and still trying to learn as much as I can. I just got out of the hospital on June 15th and was told I had GBS after spinal tap and EMG testing. I had 5 day treatment of IVIG, which caused bad headaches. Since I’ve been home, I get headaches, vomiting and diarrhea that just comes with no warning. My family Dr said it’s not from the IVIG treatment but I think it is. Never ever had something like this before.
I’ve been home since June 15th and still waiting for Physio to start. I can get headaches, where it feels as if very sharp needle like pain just shoots in my head, it comes and goes so quicklyJuly 7, 2016 at 6:56 pmI just got out of the hospital 3 weeks ago with GBS. Had no idea what was wrong with me until they did a spinal tap. I had 5 days of IVIG in the hospital. Had bad headaches and since I’ve been home I’m still getting the headaches, vomiting that just comes!
I’m still in shock at what I have and trying to deal with it. I’ve been doing lots of reading on it, then physio gave me this site to go to and speak with others. I can walk with a walker but very weak and still have pins and needles feeling in my body.
My biggest question, is what are the side effects of IVIG and how long can the side effects last for?
