I was GBS patient and now left with small weakness on my leg

    • July 2, 2016 at 3:58 am

      I was seriously paralysed before 20 years suddenly. Meanwhile with the help of physiotherapy and natural hot steam (a holly area in my country) I could get cured with in two years. However, since then I have some weakness on my leg fingers that I can’t move them freely and I cannot run and walk perfectly. I couldn’t continue the therapy for some economic reason and and I had to persue my education.

      I recenlty could understand it is GBS, after conducting a nerve test.

      Is there any one who can forward me a help note, to get fully cured?

      Best regards,

    • July 6, 2016 at 4:10 pm

      GBS usually peaks in 4-6 weeks and then begins to improve. The length of time it takes to heal varies greatly by individual and the severity of demyelination. Residual symptoms may last for years after most of the healing is done.

      GBS is a condition where your immune system produces anti-bodies that attack “self”. The standard treatments that help stop the bad anti-bodies are IVIg and Plasma Exchange. Have you had either?

      • July 7, 2016 at 6:56 pm

        I just got out of the hospital 3 weeks ago with GBS. Had no idea what was wrong with me until they did a spinal tap. I had 5 days of IVIG in the hospital. Had bad headaches and since I’ve been home I’m still getting the headaches, vomiting that just comes!

        I’m still in shock at what I have and trying to deal with it. I’ve been doing lots of reading on it, then physio gave me this site to go to and speak with others. I can walk with a walker but very weak and still have pins and needles feeling in my body.

        My biggest question, is what are the side effects of IVIG and how long can the side effects last for?

    • July 7, 2016 at 2:04 am

      Thank you very much Mr. Jim for your helpful information.
      It is nice to know the cause of GBS,i.e, the production of bad anti-bodies. I didn’t take either of the treatments you stated but only physiotherapy and natural steam.
      I am currently taking some massage on my foot and the therapist adviced me to attend regularly.

      Kind regards

    • July 7, 2016 at 11:03 pm

      There is some information in the following discussion threads that may help you understand your reactions to IVIg treatments and provide alternatives:

    • July 14, 2016 at 12:31 pm

      Hello fellow GBS friends. I am new to the site and still trying to learn as much as I can. I just got out of the hospital on June 15th and was told I had GBS after spinal tap and EMG testing. I had 5 day treatment of IVIG, which caused bad headaches. Since I’ve been home, I get headaches, vomiting and diarrhea that just comes with no warning. My family Dr said it’s not from the IVIG treatment but I think it is. Never ever had something like this before.
      I’ve been home since June 15th and still waiting for Physio to start. I can get headaches, where it feels as if very sharp needle like pain just shoots in my head, it comes and goes so quickly

    • GH
      July 16, 2016 at 3:27 pm

      Susan, it’s most likely your GI issues are unrelated to IvIg. You probably got a bug of some sort. Are you getting over it yet?