Yeah she was talking about a placebo effect from the IVIG. Her take is that I didn’t show muscle weakness and this is all sensory. During one phone call when I had asked for something for pain management she told me, “some doctors don’t even treat sensory neuropathy.” She did do numerous specialty blood labs and all were normal. She did catch the B12 deficiency which was huge with regard to how I feel. However, she is taking an “Oh well this is unknown etiology” attitude. She agreed to a nerve biopsy but reading the forum has changed my mind about getting one done. She suggested Lyrica but my insurance won’t cover it. In Tucson we are very short doctors and my plan (Aetna) had very few neurologists.
Also, how often ought I be seeing a neuro? She scheduled no further appointments. Last time I saw her was in early February.