ResearchingGBS

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  • June 19, 2021 at 3:01 pm

    Still on fence about vaccine.  Read that covid vaccine stimulates immune response which in turn creates inflammation which can reactivate autoimmune problems.  Yet when I looked on this site, it seems like around 15 people or more had covid injection without side effects which is a positive thing.    Of course, there were new two people who  developed GBS or CIDP and another who had reactivation of their disease as a result of that call.    So that is 3 out of 18 who had adverse reactions.  So guess I am still nervous about taking that risk but trying to lean towards it as I know I won’t have any kind of life in future if I don’t try.  I read MRNA vaccines are different from other vaccines but they still stimulate an immune response.  So that is why I am having trouble making decision. I hope more people who have had vaccine successfully come forward soon.  I did rule out J& J as that I think is more similar to the non-covid vaccines although I think that one would be less stressful.

    May 29, 2021 at 2:53 pm

    Paul Thanks for your response. I agree everyone is different.

    May 27, 2021 at 5:25 pm

    Jeff Thanks for letting me know. I’m still on the fence about vaccine but leaning more towards getting pfizer. It seems like whenever I get flu or when I had one pneumonia shot, my immune system attacks itself giving me debilitating joint pain, GI problems, vertigo and migraines which lasts for years. And all this has to be treated with meds and PT. The problem is that this does not happen to others and it is not really listed as a long term side effect. I have had this reaction to two different antibiotics, also. I have been paralyzed by these vaccines and meds. Can’t figure out if it is the preservatives or just my system attacking itself as I have some autoimmune conditions. For the first time in a long time, I skipped flu shot and declined 2nd pneuomonia shot 4 yrs. ago after I figured it out. And have felt good health (50% better at least as I came up from zero percent) and it is difficult to give up if I do wind up having rare side effects again. As either way, I will have no life again unless I have no reaction.

    April 10, 2021 at 3:26 pm

    I’m going for antibody test this week but was told I should still get covid vaccine. I am waiting until I get antibody test first. I wanted to get J&J but now a little hesitant due to the recent problems. But will let you know what I do if test comes out positive. Am wondering if you already have antibodies, whether that combined with vaccine will provide you with too many antibodies and a more severe reaction. But dr. says it does not make a difference.

    April 10, 2021 at 3:15 pm

    Same thing happened to me from pneumonia vaccine. My legs collapsed day after. But now I have to have the covid vacine and am fearful.

    April 3, 2021 at 1:56 pm

    Jon
    I appreciate your response.

    April 3, 2021 at 1:56 pm

    Jon

    Thanks for your response. Patty

    March 29, 2021 at 4:29 pm

    I have had 3 yrs. of PT to deal with Guillian Barre due to a pneumonia shot. Pain has gotten worse with flu shots so I did not have one this year. Has anyone developed GB from having their covid vaccine? I am planning on getting it soon but first wanted to know if anyone has had a reaction. I might want to wait for Johnson & Johnson as it is only one shot or I may consider Pfizer as there are less side effects. Seems like I developed weakness and severe pain from the pneumonia shot and then flare ups from the flu shot which caused me to pull muscles and have to have PT all this time until about 6 months ago. Now I am doing all the exercises at home but it is finally about 60% better. I was lucky mine was mild so I did not have to have any infusions. I appreciate all the responses I have read so far. Thanks for sharing and Jim, thanks for posting this.