ranger1787
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March 23, 2018 at 10:12 am
In 2014, approximately 2 weeks after getting the flu shot in Late October, I woke up with tingling and numbness in both legs up to the knee. It kept getting worse over the next few days. I was diagnosed very quickly with CIDP and started IVIG with in a month. It did not seem to have any effect, then I gradually started to see less tingling and numbness. It is now restricted to my feet with accompanying fatigue, and occasional other oddities. I applied for compensation through the Vaccine Injury Compensation Program and was able to get a settlement but it took two years and supplying all of my medical reports. There are several law firms that deal only with vaccine related injuries and they do not charge fees. Whether or not the vaccine caused the CIDP is still unknown and I have been told that research has not shown getting flu shots can reinjure you but I still do not get them and avoid hospitals and anybody who appears sick. I have also stopped eating inflammatory foods and started eating anti-inflammatory foods and exercising regularly and I remain stable. So far a positive outcome to a scarry circumstance
April 26, 2015 at 8:13 amI just thought that I would add my recent experience if it helps or just adds to the confusion. In early Nov. Of 2014 I notice tingling and numbness in both legs, symetrically, over a 3 day spance. I went to the hospital and a Physicians Assistant recommended that I see a nuerologist. After taking near a month to schedule an appointment, he at first thought that I had GBS but since it had been four weeks, although the initial symptoms were acute, had slowed significantly (slowed not stopped). After 21 blood tests, EMG, lumbar puncture and two MRI’s a diagnosis of anti-MAG was made in late Dec. The diagnosis was from one of the blood tests though as all of the test were normal except the one blood test for anti-MAG and slightly slower EMG. I was put on 10mg prednisone but did not notice any improvement. I did not notice much motor deficit but the tingling was going farther up my legs, tingling in hands, some facial tingling, ataxia, tremors in right hand and occasional breathing issues. In early Feb I stared the 5 day IVIg treatment. A week later I developed a Deep Vein Thrombosis in my leg. I started to feel better though. I did have have a very rough 4 day stretch but then except ataxia, not bad. The last four days have been bad again.
I hope this helps.
April 26, 2015 at 7:33 amI was diagnosed with CIDP in Dec after experiencing tingling and numbness up to my knees in the spance of three days in early Nov of 2014. Surprisingly this was three weeks after getting my annual flu shot in Oct. Of 2014. I do not know if the flu shot was the cause or not but highly suspicious. Is there a way to make a correlation besides timing? It might help with the compensation fund procedings. Was feeling halfway normal after IVIg in Feb but the last four days have been miserable again.
