paronnee

Your Replies

  • February 20, 2018 at 8:35 pm

    jk thanks for explanation. Following your explanation of the angle of your MAFOs, standing still would be difficult. In my experience, it’s an unusual setting for MAFO.

    February 15, 2018 at 12:42 pm

    jk. An excellent review of important points re:AFOs. I understand that wearing sold ankle AFOs while driving is awkward, it took me awhile to acclimate. I don’t think I could drive without my AFOs. As with many activities, we have learned that living with GBS necessitates acclimations and adaptations. You can talk to an orthotist about an AFO with a hinged ankle (vs a solid ankle) allowing ankle mobility; there are criteria to be a candidate for a hinged AFOs.

    I don’t know what you mean about “bias that causes undue pressure when not moving”, please explain.

    February 14, 2018 at 4:17 pm

    minazeer – Perhaps a physical therapy evaluation will be helpful to help with balance activities and determining an appropriate orthosis to help with stability. Custom, plastic AFOs definitely can be limiting and impact your daily function!

    P.S. I am a PT :]

    February 13, 2018 at 7:36 pm

    Jill Brickley – It sounds like the surgery was completed because of nerve damage thus muscle(s) weakness and decreased motion in the ankle.

    JK – For an orthosis decision, you need to take into consideration: ankle muscle(s) strength,side-to-side ankle stability, and ankle range of motion.I would love to wear carbon AFOs but my ankles need more support than what the carbon AFO is able to provide so I wear custom, molded AFOs. Check with a physiatrist or physical therapist or orthotist to determine the best AFO option.

    Balance activities: 1) Practice tandem walking; 2) Try keeping your balance while standing with 1 foot in front of the other foot (heel-to-toe) for as long as possible, 3) switch which foot is in front: 4) stand on one foot for as long as possible; 5) stand on opposite foot.

    February 7, 2018 at 3:01 pm

    Social worker suggestion is great – his primary care physician can make a referral. Counseling will help both your mother and father, if they are interested. Something to remember is that no matter how well meaning the adult child is, the parent(s) need to want help. Some parents do not want help/suggestions from children, unfortunately.

    February 7, 2018 at 2:52 pm

    I have GBS and I am a physical therapist. I wear AFOs which eliminates foot drop and helps me more stable/balanced. I highly recommend AFOs. You do not need to quit your job!