nairbear62
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August 16, 2017 at 5:49 pm
I also have expressed my concerns and he feels it will eliminate my pain but my muscles will still be what they are. But I was active, bike riding, dancing before. Now I can barely walk, so I believe I have to get this and just work very hard to gain strength and stability.
August 16, 2017 at 5:43 pmYes I have OE in knee and under knee cap. Bone on bone and no cartilage there. Cortisone shot and gel injection did not help. I have lots of pain and instability because of the knee issue. My other knee is also giving me issues. Having been adolescent when I got GBS, and ankles weak, I’ve wear my knees out with my poor gait. Thanks for your information.
August 15, 2017 at 6:54 amInterested in anyone having knee surgery. I saw a post on here, but not sure how I actually email that person. Please, I desperately need answers on any GBS PATIENTS that have been through this.
God bless and Thanks in advance!August 15, 2017 at 6:40 amWhat state are you in? Interested in neurologist who is well versed in GBS.
Good luck and thanks!August 15, 2017 at 6:30 amIt is long process and I believe unknown. I’ve been 42 years since I came down with GBS, was pretty active, no running, but biking riding. Now unfortunately, my knees are failing me and now I can say, I am disable. Looking for answers as how I can succeed with knee replacement. Good luck to you!
August 15, 2017 at 6:06 amI was 12 years old when I got Gbs. They did 2 spinal taps b4 determining it was gbs. It was in 1974, only treatment available was physical and occupational therapy. I’m 55 years old now. 8 years of PT and OT all through my school years. I agree, she has youth on her side and advanced treatment available.
I Wish her a speedy recovery!August 14, 2017 at 1:38 pmGREAT NEWS!
August 14, 2017 at 1:18 pmI am so Happy to see this Forum of knee replacement and GBS. I had GBS in 1974 as a 12 year old. No advance treatments were available yet, so I did PT and OT for 8 years, basically all my School life. Calf and ankle muscles are very weak i.e. cannot do tip toes, walk on sides of feet and have gait they could not correct. So now I am not 55 yrs old and have had swelling in both knees, pain when walking any distance. August of 2016 I was walking my Dog 1 mile daily, working full time and did not need assistance to walk and do stairs. Fast forward to Dec 2016, experiencing give out on right knee, pain, fluid build up. Did cortisone and gel injections – No help. Orthoscopic surgery to repair torn menisus and they found a lot of Arthritis and zero cartiliage. I am off work since May 2017 on medical, use a cane and cannot do stairs, even 1 step, if so I need both arms on support and try to do straight legged as bending is painful and both knees are weak. I have been active in past! How can both knees break down at same time? Can I succeed with Knee surgery replacement. I have been told by some Ortho Doctors that there is nothing they can do because they cannot fix lower extremites of weakness and atrophy of muscle. My current Ortho Doctor said it would help with pain to remove arthristis but in the end I will still walk same which I believe has caused the Knee issue in first place. Anyone have any thoughts, help, experience? I am located in Michigan. Thanks 😉
