I looked up your symptoms on the web, as I am sure you have done. Nothing that meets all symptoms. Until the doctors can figure it out, you could try an herbal remedy. 1 Tablespoon Turmeric in a cup of hot water 3 times daily. If you can find fresh turmeric root that is better. It helps relieve nerve twitches and inflammation. Not a cure all, but maybe slow down the suffering.

Thank you for the offer. If I continue to not be able to get an appointment with my doctor in the University of Chicago, I might need that. Send the name along just in case. I’m calling them back again today. F

I sure hope it works for you. Since March only; that’s really quick. Of course everyone is different, but CIDP is normally slow moving to get to the point you are. I guess I am lucky. I’ve had this since 2003 or so and it started getting bad only in the last few years. I do get the creepy-crawlies where it feels like bugs are crawling on me sometimes. I didn’t know if that was a symptom of CIDP, or maybe a symptom of Neurotin. Weird stuff. I do get get mixed sensations in my feet. Sometimes it feels like I’m walking in a wet sock. Also, I am both numb and hypersensitive to pain. Go figure! I’m interested in what your test results are. What is your area of the country? In my mind, I still think this is being caused by something in the food we eat everyday. It took over 20 years to find out saccharin caused hardening of the arteries and not for everyone. Too bad our country has been behind in medical research for the past 15 years. I am from Chicago originally.

Dear BCProblems,

I have never heard of those symptoms with CIDP. I suggest you get yourself to an emergency room. Could be some kind of poison or allergic reaction. I have had CIDP for 14 years and I do not think red lines and red fingers are a symptom. Usually, it starts in the feet, then begins to work it’s way up the body. I have it everywhere to some degree. If the pain is really bad, it could be cellulitis. I had it once in the foot, and that was exactly the symptom. If it is, it needs treatment without delay. Try to get to a health professional quickly.

I read through it. It explained a lot. I am now trying to get financial help to get the IVIG. Subcutaneous may not work for me. I would like to speak to my doctor, but cannot get an appointment until January 2018. If I cancel my insurance, then I can get financial aid that would pay for the drugs for a year and I could go to any state. That would solve my “can’t get an appointment” problem. As an Illinois resident, I am only covered in Illinois. Since teh University of Chicago was my 11th neurologist and the only one to diagnose me, I think I am better if I cannot go back to same doc, that I go to a center in another state with doctors who understand CIDP. As it is, I am stuck in a loop.

Wow! I asked my doctor about this, but he just shrugged. It doesn’t really look like a fungus, but after I began teh symptoms of CIDP, but before I was diagnosed, my toenails turned white and hard and fell off without paid and a new one was growing underneath. In the past several years this has happened at least 5 times. The new nail looks fungus free, but soon the process starts again. Always on the same toes. Some nails look white, but never fall off. My feet are extremely numb from the disease. Toe fungus medicines to not treat.