January 27, 2020 at 8:55 pm
Three years in June for me. Though I cannot claim to have actually had GBS. My symptoms were mild, so they avoided testing spinal fluid during the acute phase. I failed to present with the weakness that is typically the tell-tale sign neurologists look for. I never lost the ability to walk, though it was extremely difficult at the peak. Symptoms started after an adenovirus infection, just started feeling a malaise and tired after I had been feeling better following the infection, then an intense pain in my lower back, after which I noticed numbness and tingling in my legs, which moved to my arms, and finally face, which became mostly paralyzed. There was also bowel involvement, in that they were seemingly paralyzed for some time.
At this point, as a result of my GBS-like syndrome, I still experience transient paresthesia, particularly in my feet and lower legs. My top left foot is still slightly numb. Infrequently, I have stabbing nerve pain in my feet, that usually only lasts a few seconds. My ability to detect hot and cold sensations in a timely manner seems reduced in my hands – I tend to burn myself by accident when working with hot items.
After reading about some of the GBS cases on this site, I count myself VERY lucky. So I’m not complaining too much. Best wishes to everyone out there recovering from this sort of thing!September 7, 2017 at 4:09 pm
Just to follow up with everyone, I had an appointment with a neurologist today. I sort of got a diagnosis. He said that it was a post-viral syndrome and the its entirely possible that it was GBS, although a very mild case. He said he has seen it all over the spectrum, from very mild to severe. He said that with the proper testing before the symptoms started to resolve, it would have been possible to confirm GBS. At this point it’s really too late to make a positive diagnosis and any tests for demyelination would be painful and really unnecessary considering how mild my symptoms are on the spectrum.
He said that given the mild nature of my case, no treatment was the right course of action. Had they realized it was really a post-viral syndrome, they might of tried IVIG, etc, but that it was better that I did not get treatment because of the side-effects and potential complications.
Anyway, thanks for the support. My recovery is coming along nicely and I’m no longer in pain, though I still have some numbness in my left big toe and some dysesthesia in my arms and legs. I hope this helps someone else understand what they might be facing.