Mattrc77

Your Replies

  • Mattrc77
    March 22, 2021 at 4:13 pm

    Hi Jim it will be in Ca at medical office and I’m not sure what version they will have on hand, if this doesn’t work out I think I will be going the CVS route?

    Mattrc77
    March 18, 2021 at 7:28 pm

    Hi everyone just needing some advice I have an upcoming appointment to get the vaccine but I don’t have enough time to get a medical referral from my doctor until April 1 has anyone had any luck with showing like a health summary from your doctors office that would show your being treating for CIDP & other heath related conditions?

    Mattrc77
    March 18, 2021 at 7:21 pm

    I have an upcoming appointment to get the vaccine but I don’t have enough time to get a medical referral from my doctor until April 1 has anyone had any luck with showing like a health summary from your doctors office that would show your being treating for CIDP & other heath related conditions?

    Mattrc77
    September 28, 2016 at 11:18 pm

    Thanks Jim!

    Well I was diagnosed CIDP back in march and so far my legs and arms were just being affected at the time and I also suffer with a small CSF leak that I hope to have fixed this week with a Blood Patch. Last month I got a stomach Ulcer from the meds and caffeine if I had to guess but right now my nerves seem to be going off in my back after I eat and I’m having side stitch pain when I do like a flanking motion. So I can’t really tell what might be the worst player in this mess.

    I will start Prednisone next week and I hope it will help and not make this worse.

    Mattrc77
    September 27, 2016 at 12:24 am

    There’s a lot of good universities in California with good Neuroscience centers, if you can I would try to go over to Cedar Sinai.

    Mattrc77
    September 19, 2016 at 7:15 pm

    Could anyone give me an idea of what lab antibody panels my Dr could run through Athena for cidp, and if there is any other alternative companies also? thanks

    Mattrc77
    May 20, 2016 at 9:55 pm

    I’m no longer going to be seeing my current neurologist due to some issues with a few different things that have caused some disagreements on both sides, I did get approved for IVIG but do to leaving my neurologist I will have to get it under a different Nero. My diag came from a very positive EMG showing signs of CIDP & elevated proteins from the CSF. Would you think another neurologist would feel confident to just start the treatment in your opinion?

    I know this is a wired question just wondering if any of you have been in a similar situation.

    Mattrc77
    April 15, 2016 at 9:54 pm

    So my neurologist is going to start IVIG treatments, I believe he’s going to do 5 days worth of treatments for one week the dosage should be based on my weight from what he said. Does this it sound pretty standard to you guys for first time?

    Mattrc77
    April 11, 2016 at 1:28 am

    Well my CSF proteins were actually elevated, so my neurologist is looking into IVIG at the moment. Would a nerve biopsy be the last test to run to check for someone that has cidp or any of the variants?

    Mattrc77
    April 6, 2016 at 1:13 am

    Well I’m still waiting from the results but I was able to go to the ER and have a blood patch preform.

    Mattrc77
    April 3, 2016 at 2:43 pm

    Thanks for the information JK!