jllcidp
Your Replies
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August 30, 2014 at 11:07 pm
I understand the frustration. I contracted GBS/CIDP after a H1N1 flu shot. Neuro said GBS first. But after relapsing and never recovering fully I was changed to CIDP. It has been a year since my last hardcore relapse, but I still have all those symptoms you describe daily. And I am not sure they are getting better.
Hang in there, everyone!
August 30, 2014 at 10:56 pmCidee, don’t feel sad. You are not alone – it happens to a lot of unsuspecting people. You know you can get compensation right? Have you heard of VICP? You can start from there. It is not as daunting as you may think.
In the meantime hope your treatment is working for you.
Hang in there!
August 30, 2014 at 10:45 pmGood for you, gslm! You are now getting somewhere positive with your fight for your health and for justice!
It was heartbreaking to follow your posts in this thread because I could just see how scared you were. And later to learn that you finally were diagnosed with CIDP and it was the flu shot that caused it; so very sad, yet so not surprising at all.
I really hope your treatment is working and you will relearn what you loved to do and things go well with the VICP.
Hang in there and best luck!
August 30, 2014 at 10:23 pmMACKAY1, I have CIDP and all those symptoms you described. You are not alone.
June 16, 2014 at 1:09 amGslm, I am so sorry about your diagnosis. My CIDP was caused by a flu shot too, the H1N1. It happens a lot. There is a vaccine fund you can file against. Hang in there!
