garyhendershott

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  • garyhendershott
    November 8, 2019 at 4:55 pm

    Jim— this goes to Tim 11 too please. Your so correct that it is both CIDP & Axonal degeneration at the same time. There has to be an answer to this darn stuff that is ruining our lives. God built us with almost 2 of everything, and I certainly hope there are two sets of Axonal nerves. I am going to the Mayo Clinic to see if they have anything in Advance Research on this and will keep you all posted. Gary

    garyhendershott
    April 25, 2019 at 5:37 pm

    I just tried to call give me a shout when you have time Gary 505 204 1870

    garyhendershott
    April 25, 2019 at 1:22 pm

    Hey Tim what are your thoughts —I dont really have a plan of any sort. No medical or medicine plan whatsoever. Advise your thoughts — How can I connect with others that have the same Acute Axonal Neuropathy that I have which is a form of GBS — there are so many variants of this disease. Advise and Thanks Gary

    garyhendershott
    February 18, 2019 at 10:49 am

    Thanks Tim I guess I am looking for a group or a meeting to attend where someone else has the same darn thing that I do?? I belong to this CIDP/GB group as I joined 4 years ago, so was hoping someone might have some ideas within our group? Thx Gary

    garyhendershott
    February 18, 2019 at 9:37 am

    I have the reverse in that I was diagnosed for 4 years as having CIDP and took IVIG every month. Now the doctors have decided I have Axonal Nueropathy which is acute and I am in a wheel chair 90percent of the time as cant walk or balance. The doctors proclaim no known treatment or medical plan just live with it. Has anyone else had Axonal Neuropathy I am not sure that the doctors are really sure that any of these diagnosis is accurate for any of these forms of auto immune neuropathy. Any one else have any ideas

    garyhendershott
    December 13, 2015 at 2:20 pm

    I have CIDP and have been taking IVIG for almost a year now— I am a month late getting the infusion and worry that I should not wait much longer? I can’t tell if the IVIG is helping or not, but it is the only medicine prescribed to counteract CIDP. Also has anyone built back their leg muscles after Axonal degeneration caused by CIDP. What
    is the success ratio to build back your demiylination (?) after having CIDP for 3 years or so. Thanks — Gary