Your Replies

  • July 19, 2019 at 9:27 pm

    Also, prior to my first infusion, I checked with the infusion center regarding any costs to me. The center said it was paid in full by Medicare & Horizon BCBS. So when I received a small bill from the infusion center, I called and they canceled the bill.
    I take IVIG premedication at home, saving time for premedication to take affect and saving insurance company some $. I don’t drive on treatment days.

    July 19, 2019 at 9:00 pm

    I would begin by contacting doctor’s office personnel or billing Dept. They should be knowledgeable about different types of GBS/CIDP treatment covered by insurance companies, percentage covered, patient copays, yearly maximum paid, etc., to your doctor.
    Then I would contact insurance companies and ask to see
    coverage in print.

    March 16, 2018 at 10:36 pm

    Hello, Amysplawn.
    I was diagnosed with CIDP Nov. 2017 because I finally had a spinal tap.
    January 2016, I had EMG testing and my Emory St. Joseph neurologist suggested a spinal tap as another diagnostic tool, but I chose to wait because the symptoms were only in my feet and legs and it seemed I had PN, a non-treatable condition. Because I put off the spinal tap, I experienced more nerve damage and many more life-altering symptoms.
    January I began IVIG, and am now experiencing some improvement.
    I wish you well in finding a diagnosis.