DavidH
Your Replies
-
August 18, 2021 at 5:13 pm
Just got a pfizer booster today, after getting the first two shots in March. Was at UAB for visit with my new neurologist-moved from Texas last year. He stated I was eligible for booster, -on hizentra, prednisone, and azathioprine, which qualified me for booster. Then saw sign up for covid vaccine in lobby-took all of 20 minutes. No side effects noticed yet from booster, and none noticed from the original shots except an incredibly sore arm.
December 14, 2020 at 4:31 pmJD,
In response to the original question, I have essentially all sensory symptoms with little loss of motor functions. It includes numbness? tingling? in my mouth, lips and tongue. Not severe, but noticeable.
I just went thru about a 12 month period where I had no appetite-food lost its taste and appeal after the first bite or two-lost 40 lbs. Thought it might be related to the mouth issues. Then within the last month I still have the tingling, but appetite and taste have returned and I gained 6 lbs.
I want to find a balance where I can enjoy the food without putting the weight back on.June 12, 2020 at 2:44 pmThanks Jim. I know you had some recent upsets in your life, hope you are recovering well. You sure seem to have the answers.
June 6, 2020 at 8:36 pmI switched from IVIG to SCIG about 8 months ago. I switched because I felt my condition was getting progressively worse between each infusion and was not getting that much better after the infusion. SCIG appears to have taken the dips between infusions out, but I still feel like I am on a slow decline. The self administered infusion is sure handy though. Just relocated, from Houston TX to Birmingham AL, so will be addressing this slow decline with a new doctor as soon as possible.
June 6, 2020 at 8:24 pmHowdy,
First post on the forum. I was diagnosed with CIDP in August 2017. Essentially only sensory effects, loss of feeling in feet, lower legs, hands, loss of balance, etc. Currently on Hizentra, (subcutaneous infusion) and am about to retire and go on Medicare. Has there been any changes in covering at home infusions by Medicare? How are others handling this cost?March 19, 2018 at 2:44 pmAll right, I admit I must not be as savy as you are. How do you change the password?
