I don’t have anything now, just vitamins and a doctor that sort of knows about it. I’d love to know how to find a doctor in the Denver area that specializes in it.

When I first got it, the first week was spent testing me for a stroke, then spinal neck injury due to previous injury, then MS, then RA, and THEN after changing doctors, they sent me to get a spinal tap. It was weeks afterwards so the test was inconclusive because there was enough time for the white blood cells to receded from the spin but the count was still high. They did the test where they shock my nerves to see if it reacts quickly and readings came back good even though they could see something is not right. Then sent me to another neurologist (again this is about 3 months in) and he looked at the testing and symptoms and just said you have GBS, not much we can do at this time it’s too far in.

I’ll take a look at CIDP to see how it’s symptoms match up. How do I find better doctors?

I only had physical therapy the first few month just to focus on my legs until they felt less painful. I also used acupuncture during the first year. It was bi weekly and for about 3-4 months until the cost started bothering me. It seemed to help give me energy for about a week, and then the second week I would be drained again.

My doctor did some vitamin tests on me when I said I was always sleepy. Found I had a vitamin D deficiency and told me to take supplements. That helps some-days. I’ve found Vit B-12, D, Zinc seem to help just not 100%. Based on your reply I bought some Vit C and will start that today. I’m interested if it helps too.

I live in Colorado and the cold will cause my hands to cramp up in the pinky or thumb. I love winter, but it’s the most painful.