Curt Oglesby

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  • Curt Oglesby
    December 27, 2019 at 12:25 pm

    Hi Daniel, I don’t know if this is normal to the point of surgery, but really depends on the length of stay you had in the hospital and the care you got while there. I had sever “Foot Drop” as they call it since I was in the hospital for 3 months before PT started. They were unable to put on any braces to help due to the amount of pain in my feet and legs due to GBS, so I had a sever case of Foot Drop, but it was mostly worked out in PT by stretch the tendons. I did not have to have surgery though.
    I would say that this is more due to your time down than to due to GBS itself, but I am not a Dr. and so cannot confirm that.

    Hope you get it all worked out.

    Curt Oglesby
    November 14, 2019 at 12:16 pm

    My diagnosis was in January of this year and I also had a very bad case where I was on a vent for several weeks. I had 2 months of inpatient Physical Therapy and then I am still doing outpatient. I was able to finally start walking with a walker in April and slowly progressed from there. I have gone through a lot of peaks and plateaus but I walking with almost a normal gait now but still have sever tingling and numbness in my feet.
    Like you all have said, everyone is different, so be patient and keep a good attitude as it will be hard.

    Curt Oglesby
    November 14, 2019 at 12:08 pm

    Hi Kate, When I was in the hospital with GBS and had a trach so could not talk. I also could not use my arms and only had slight hand and finger movement so the cards worked for a while using blinking, but was not easy at all. The Letter board was the best, but it took a lot of patients on both sides as a lot of times I could not control what letters I stopped on.

    Biggest thing is to be there and try the best you can.. It helps..