angelast

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  • angelast
    September 29, 2011 at 9:53 am

    I have had CIDP three times always following, by a few days, episodes of atrial fibrilation. I am in remission now.

    angelast
    September 10, 2011 at 5:15 pm

    I will be eighty on my next birthday and have had CIDP off and on for three years. The diagnosis took a while because the neurologist suspected either a stroke or cancer. Right now I am in remission but my legs are weak considering that I was a great walker before this hit me and I still go a couple of blocks when I can. I receive monthly infussions of both solu-medrol and Gamunex and at my age it is difficult to separate side effects-like compression fractures and catarats- from natural aging.

    angelast
    April 10, 2011 at 10:14 am

    I have been given weekly infusions of Solu-Medrol before the Gamunex infusion. As usual with CIDP, there is no way of knowing if what improvement there is was a result of the treatment or would have happened anyway. My worse problem right now is pain around the hips that keeps me from trying for further gains. I have been on Prednisone also. It is the first choice for some neurologists others don’t like the side effects. Who knows?

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