WELL….. so far so good! Thanks With Hope

    • April 12, 2008 at 10:15 pm

      sorry no info

    • Anonymous
      April 13, 2008 at 9:36 am

      I’m was just checking in to see how he was doing.

      All I gotta say is YAY!

      And I hope it lasts.


    • Anonymous
      April 14, 2008 at 6:53 pm

      Hi, I see you posted this almost two days ago. I hope things are still going well and the icky headaches and vomiting are staying away. Good luck.

    • April 14, 2008 at 7:13 pm

      Things were great compared to usual. The headaches and nausea/flu symptoms only lasted 6 hours this time. compared to the usual 36 hours. I let Kevin sleep through the night, so he was without tylenol once, but he did still have the aleve in him. I suspect it is a combination of things; his body is getting used to the ivig, aleve works better than motrin for him (thanks With Hope) and Kevin’s explanation, he is just used to the pain. So hopefully things will go this good or better next month. I am happy to report he has been riding his bike around the neighborhood for 2.5 hours and is now on the trampoline with his 5 best friends, the nicest boys you could ever meet. They were so worried when the called Sunday morn. to go to the movies and Kevin was too sick. They even visited him during treatments! Have a nice rest of the week, and I hope the weather is nice by you guys too!
      Dawn Kevies mom

    • Anonymous
      April 15, 2008 at 10:22 am


      Kevin is so lucky to have such great friends. I remember being his age and I had a few neighborhood friends and we played outside until dark every day. 27 years later, I am still friends with two even tho one now lives in Texas.

      Kids just dont play outside like we did and I’m glad to hear Kevin is. I have an 11 yr old stepdaughter that doesnt really have any friends and not much interest in making or keeping them. It’s sad.

      Awesome he is doing so well. I think about him all the time.

      have a great day.