Watery Eyes and Puffiness
AnonymousAugust 31, 2008 at 7:08 am
Hello, I got GBS in August 2006 and my body and face were completely paralysed. At that time my eyes couldn’t shut and I had tears streaming down my face. Recently I’ve noticed that I’ve been wiping away a few ‘tears’ from my face again and in the morning I’ve noticed that my eyes are really puffy. This lasts a while during the day and looks awful. Has anyone been experiencing the same problem? And how do you handle the problem? Thank you so much.
AnonymousAugust 31, 2008 at 8:47 am
I’m not an expert, but sounds like your immune system is reacting to something… May be an allergy? Are you taking any meds? I know I’m starting to develop reactions to environmental (i.e. ragweed), that I could handle when I was younger… Just a thought…. Then again, we’ve changed post gbs…..
AnonymousAugust 31, 2008 at 9:56 am
I discovered that during the night, my eyes were coming open a little – and I never woke up – so they dried out then began making tears like crazy make up for the dry eyes! My eye Dr told me to use lubricating eye drops several times a day. I also sleep in a mask often – to help hold my eyes shut. That actually helps a lot. Good luck.
AnonymousSeptember 8, 2008 at 10:33 am
Hi, I just wanted to thank you for replying to my post. Since then I got myself some lubricating eye drops as I’ve been using fans and air-conditioners to beat the heat. My eyes are a little better but I’ve noticed that the problem is more in one eye than the other. I will have to get my doctor to check it out Thanks again 🙂
AnonymousSeptember 8, 2008 at 10:57 am
Hi, I had GBS 25 years ago and did have a bit of puffiness at times. I too could not close my eyes all the way. I still have one eye that will water up quicker than the other. It cries before the other one when I am sad. I never thought of trying lubricating drops and I am not sure at this point if it is a big enough issue any more for me to think about it. But hope it works for you.
Keep posting. It is nice to have new folks here!
AnonymousSeptember 8, 2008 at 1:10 pm
Hi Anne, I have the same problem almost everyday. I just go about my day and it eventually stops. Some drs have told me to just open my eyes wider—yeah right they are open as far as they will go–sometimes you just have to wonder how they got their degrees.:rolleyes: I know my eye waters more when I’m tired and usually have over done things the day or night before. Rest and more rest helps me most of the time. I like to watch people who don’t know me, they actually change their demeaner when they see tears coming from my eye:D My daughter just gives me the wipe your eye signal if I don’t notice it.:)
AnonymousSeptember 16, 2008 at 10:31 pm
Hello, I had GBS this past winter, and still have the symptoms in my face that you mentioned and some others as well. My eye dr told me to use one kind of drops at night, and another during the day (numerous times). My neurologist told me the nerves grew back in a different way, and that is the cause of the tearing, not able to close your eyes all the way, and other facial issues. He recommended bo-tox; which I will not do after research and asking this board. I also get that puffy look, and feel like I don’t look like myself anymore. I hate getting my picture taken anymore b/c my face, smile and eyes all look weird to me! Good luck:)
AnonymousSeptember 17, 2008 at 4:36 pm
My eyes will get like they have a sand pebble in them and hurts like you know what when it happens and then I will get all teary eyes and not be able to move my eye much at all. Have to keep it closed for the pain to stop. Even went to see an eye doctor and complained about getting double vision at times, weird eye movements and gritty feeling eyes. Then I get itchy eyes and they get dry. Just found out it was my thyroid gland causing the eye issues. Never knew the thyroid could attack the eyes! I guess I learned something else new with my diseases. Never a dull moment is it being sickly! Right when you think you have yourself figured out something else pops up to surprise you wondering what it is! Hope you feel better soon!
AnonymousSeptember 18, 2008 at 8:52 am
Well now that you mention it, I have trouble with my eyes too! After the onset my eyes were frozen wide open. The slightest breeze they water like crazy. Which I would think is normal but this is extreme watering. The Sinus turn on the water works and I choke on the post nasal drip. My tears seem to be saltier than normal and dry up around my eyes and I don’t notice and it just does not wipe away it has to be washed away. I had goop in my eyes one morning, about a week before I had my onset of GBS. It was like the stickiest stuff. I thought I had an infection. it was never that bad again but I had puffy redness all around the eyeball that looked like I was getting pink eye and I was just ready to go to the doctors and it went away and then the onset of GBS come on with a vengence. I still have over production of eye fluids that seem to be set off with the slightest stimulation. Light, breeze from movement. When I am over tired then I get the droopy eyelids and the sand peebles in my eyes. The outer corner of the eye seems to be chapped or dried out and sting…nothing is there and it is not red. I take care of it by wearing sun glasses with closed sides when outdoors. During the day I wipe my face with a warm cloth several times a day. I notice my husband tears up more and thought maybe it was due to age. Now you have me wondering. I did go to the ENT specialist just a month ago. Tests for allergies come up with no allergies. Funny how this thread come up just as I am fighting another battle against the GBS residuals. It will be interesting to find what others find. I have the same type of drainage that is dry and sticky in my sinus too…..no infection, just a different consistancy. Will be interesting to keep up with the thread to see if others have got answers from their doctors. I have another appointment coming up shortly with the ENT. He gave me nasal sprays and not touched this goop!
AnonymousSeptember 18, 2008 at 9:23 am
You know, it is interesting. I always feel a bit wet around my eyes but never gave it a thought. This makes me wonder…
LadyKITUSA, your comment about redness made me think of something. I get really blood shot eyes for no reason. The whites of my eyes get bright red, almost as if a blood vessel has ruptured. It takes about 4 days for it to go away. Does this sound familiar to anyone else?
AnonymousSeptember 19, 2008 at 10:00 am
Jan while in the hospital for 9 weeks I had double vision and the eyes were swelled and sensitive to touch. I could not see well in a mirrow and did not even recognize myself when I did look in the mirror. I do know that I had very bad hemoraging in the eyes to the point the blood would gush across my eye and block my visition each time I moved. Trying to walk was terrible I would have to keep stopping until the blood would clear enough for me to walk again. I had no periphial vision and that come back slowly still coming back. It was amazing to look at my charts to see the field of vision was improving with each visit to the Neuro Optomologist. I don’t remember any blood shot eyes but I would have had it checked out. Eyes are very fragile please go to your doctor. Probably the worse thing they could have done in the hospital was to tilt my bed where my head was down lover than my butt to slide me back up in the bed so they did not have to lift me. Some times it would not work and they would have to call the lift team to move me but they would leave the bed in that position. I could feel the pressure in my head and eyes but I could not talk. I would just pray they hurried so they could set my bed back up. Once they tilted the bed and it hit the wall above me and plaster come down into my eyes. It left a big hole in the wall. They just laughed and said “I won’t tell if you don’t tell”, to each other. I wanted to leap out of bed and smack them both and say “what about the plaster dust in my bed and eyes?”. Even after that they would hit the lamp on the wall with the bed. I am not even going to tell you about the ride down the halls on the stretchers, but I think the staff in hospitals should have to pass a drivers test for traffic in the halls! They should wash the ceilings too! LOL 😮
AnonymousSeptember 19, 2008 at 2:11 pm
Hey Kitt! That hospital in my area is nasty. Don’t know why, but when I go into a hospital I often see clean places and it’s supposed to be clean especially with all the bacteria floating around. I hate going to the bathrooms in the hospital in my area. I have a ceramic tiled bathroom in my house and it’s always white and clean.
Go into my local hospital and the grout in the bathroom is black dirt! Not black grout but dirt. Looks like the floor has never seen tilex before! 😀 And then I see mold mess on the baseboards. That gets to me! That is not keeping a hospital clean! I know the difference between clean and being tracked and filth! A this is filth! Housekeepers there are to lazy to clean it. And the mops just smear the dirt more! Yeap! Seen the ceilings too! 😀 I even notice the walls!
AnonymousSeptember 19, 2008 at 10:30 pm
[B]jan’83[/B] I also just noticed I have a black eye again. Right next to my nose. Sometimes I get two black eyes and I think they are just from washing my face or rubbing my nose. I keep forgetting to tell the Doctor about them….I hope that clue would have him find out that is wrong with my Sinus. I have a friend that had a sinus infection that he ignored and it ate a hole into her nose from her sinus. They just did her surgery today and used fat from her butt to plug the hole and used some kind of glue to hold it in there. She has to lay on her back in the hospital for 3 days. She will be out of the hospital in five days.
[B]Linda[/B] You can see water leak marks on the ceilings and where a person threw a pencil up and stuck it in the ceiling tile. A few marks that I don’t want to know what they were. But nothing like you are describing in your hospital. That is terrible. Sounds alot like what the Veteran Hospitals were like. The USA has to take some pride in their jobs and the health care system has to also take measures to make improvements. Too many infections that are obtained in hospitals to let stuff like that.
AnonymousSeptember 20, 2008 at 6:59 am
Hey Kitt! The outside of this hospital looks nice and is well kept. The inside is the pitts! It used to be a nice hospital too. Too many high paid CEO’s spending money very unwisely there. What is more important? Healthcare and clean healthcare or a water fountain in the front flowing all the time. I was laying in bed one time and they had the sheet laying on me and I found a plastic tube of something on the sheet. Never did find out what it was. But with all the diseases out there we do need to have more sanitized areas in our hospitals. Gosh! One air borne virus in that place and it would spread like fire because of the filth. Ohh yes! The goop on the ceilings! LOL! I too have wondered what it was. I have even seen dried blood on my stretcher and that got to me! Yukkkk!
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