Therapies for Facial Palsy?

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    • #117817
      Devlet
      Participant

      9 months ago I had a severe form of GBS including paralysis on one side of the face (unilateral facial palsy). Since then, I’ve significantly improved except for the facial paralysis.

      Has anyone tried invasive or non-invasive therapies or procedures for GBS-related facial palsy (e.g. needling, ESTIM, massage, surgical procedures)? Have you experienced any improvements?

      It’s been said that improvements can occur as late as 2 years from the onset and beyond. However, I am wondering if it’s just a waiting game or recovery can be stimulated, especially as muscles become atrophied after long-term paralysis.

    • #117818
      Jim-LA
      Moderator

      You should look into Miller Fisher Syndrome as it could be what has caused your facial paralysis. Here is an article that will better explain MFS:
      https://www.statpearls.com/ArticleLibrary/viewarticle/25164

    • #117819
      Devlet
      Participant

      Thanks for pointing out the article, Jim.
      Based on this and one other article, I doubt MFS was the cause since my first affected nerve groups were in the legs and not in the head, and there were no symptoms of ataxia nor ophthalmoplegia.

    • #117820
      Jim-LA
      Moderator

      In my case MFS followed GBS by 4-6 weeks, followed by CIDP. Plasma Exchange stopped my MFS and was the key to curing it for me.

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