The Band

my band is higher. about four inches wide just under my shoulderblades and goes all the way around by body. It comes and goes. When very tired it comes back. In October I had a really tiring time at work and doctors sent me to ER thinking I was having a heart attack. Kept telling them it was GBS, even brought the phamplet with me to er. This is also the location of strong pain during the begining of mt symptoms. Dorctor thought it was common back pain and put me on muscles relaxers.

I remember having that band for a few months after
I started walking again.
Ron

Around the waist.

Shirley

I also have that “tight band” feeling. Mine was considerably worse at the onset; however, I still get it off and on.

On the old forum (2002-2006) people were constantly talking about the band. When I was at my worst, inpatient at Mayo, I kept trying to tell the doctors & nurses about the rope that was tied around my chest & felt like someone kept tightening it. They said it had nothing to do with GBS or CIDP & kept ordering EMGs for my heart. Once I got on this forum, I realized how common it was, it is a band of nerves that runs around the body (usually the chest) that get irritated in some way & inflamed, causing pain. Mine can mimic chest pain so well. I get it when I visit a lot late into the evening, even 8 1/2 years out now.