Residual symptoms worsening Boston specialist

    • August 29, 2017 at 1:49 am


      I suffered from GBS 6 years ago and I’ve had residual symptoms ever since, although my doctor back then had told me that I’m on the road to full recovery. My residual symptoms were numbness in knees/ still no reflex / my knees giving out when tired / weaknesses in fingers when tired/ chronic fatigue.

      Recently, my residual symptoms are getting worse. My knees are constantly giving out on me, and I’m almost afraid of falling because it is difficult to balance myself, especially when I’m walking downhills. I also have constant tingling sensations in my feet and hands.

      I don’t think it’s a relapse, because the symptoms have been there for a month now. Should I get worried? I also just visited ER due to shortness of breathing, but everything (heart ultrasound, chest x-ray, blood sample) came back normal.

      Is there a GBS specialist in Boston? It’s frustrating to not know what’s going on… I’ve talked to a neurologist friend about this, and he thinks that I should just eat right and exercise.

    • jk
      August 29, 2017 at 12:24 pm

      Centers of Excellence are listed on this website. located here:

      Centers of Excellence

      What is the relevance of one month and relapse? How does one exclude the other?

    • August 29, 2017 at 7:42 pm

      It almost sounds like you have CIDP, which is chronic. Find yourself a neurologist and get treated ASAP. Good luck.

    • GH
      August 30, 2017 at 12:34 am

      Your neurologist friend must not treat GBS/CIDP.