Post-GBS Tingling

    • fh4eva73
      June 24, 2024 at 4:23 pm

      Hi everyone! I am new to this forum, and I had a question.  I had GBS back in 2022, and was in the hospital around a month with paralysis and breathing issues.  I recovered fairly quickly and did not seem to have any residual muscle/nerve damage.  Recently I have noticed that when I get frightened, I get tingles all across my body.  I also just started running again and have been getting tingles across my whole body when I am done.  Has anyone experienced this type of tingling post-GBS during times of excitement/exercise?

       

       

    • fairly_odd_mother
      June 24, 2024 at 5:05 pm

      Hi there

       

      Glad you found this place.

      I had gbs in 06 and I still experience the full body tingling when excited/stimulated. I remember it being much worse while I was “recovering”.

      Since you’re still healing this may ease for you as time passes since we’re all different & heal differently. If this is really bothersome, talk to your Dr or neurologist. You may need a nerve conduction study to see where you’re at & how things are coming along.

       

    • Bar2
      August 1, 2024 at 8:41 pm

      Eleven years post GBS, severe residual axonal nerve damage. Many many issues as a result and have been on disability since then.
      Constant nerve pain etc. As far a the pins and needles always to some degree But if shocked or startled or scared like in car traffic. Then severe puns and needles. In my case my problems are intensifying possibly due to additional ongoing  denervation from CIDP