Please Help Me Advice/support On Stem Cell

    • Anonymous
      August 18, 2010 at 9:36 am

      I cannot get stem cell treatment out of my mind because it is probably the only way for me to be better then what I am.
      I am 69 years old, but healthy except for this syndrome. Could I be denied because of my age?
      I am in a remission. Would I be denied because the hospital and insurance will say I don’t need it even though I will never heal from the severe damage and walk again?
      Can I recover to the point that I don’t need a wheelchair anymore?
      Since I am in a remission I no longer have a neurologist to help fight for approval. Would my PCP be able to help me?
      I would probably have to go through this alone. I don’t feel confident that my brother would help and support me. I know of no other family or friend who could help me.

      I believe I have good medical insurance.
      I am strong, not physically but in emotions and spirit.
      Stem Cell is the only treatment that has a chance of getting me back on my feet.
      If I am denied because I am in a remission the fact that I was told I have a second chronic syndrome might gain me approval.

      What a miracle stem cell is for us. Yes I do want a better life for myself.

    • Anonymous
      August 18, 2010 at 1:33 pm

      Liz, I am going to PM you.


    • Anonymous
      August 21, 2010 at 12:13 am

      Whether or not there are, please let the stem cell people help you determine if you are eligible.

      furthermore, they have a group dedicated to helping you with insurance.

      You see, I went to Chicago’s NW Univ stemcell place for an evaluation recently and I learned a lot of things.

      Notwithstanding that visit, I had an extensive clinical evaluation yesterday with a neuromuscular specialist at UCSD. Tha’s Univ of Calif San Diego Calif

      He said something like “you probably would benefit from IVIG even more aggressively. And Rituxan is probably better than Imuran and it is much stronger. Results from Imuran can take up to one year. But, try IVIG on a 5 day schedule first. If it were me I would postpone stemcell transplant for now.”

      standard warning: every case is different!

    • Anonymous
      August 25, 2010 at 1:03 am

      Call NWH and let them evaluate your case. I was on a remission when I had my SCT. I had a relapse early this year while i was trying to get approved by the insurance. At the time I went to Chicago I was on a remission.

      Check with them,that way you’ll know for sure.

      If you have any questions dont hesitate to ask.