New member….looking for good doctor

It sounds like your mother is being discharged from the nursing home too early. Insurance rehabilitation days may have been maximized. I know that Medicare only covers 100 days. If she is not a senior, then you are stuck with her private insurer. The question is: can she get proper care at home? If not, she should have stayed put. But, you would be faced with paying that facility privately and that could cost a bunch. Medicaid is an option, but you would have to speak to the nursing home Medicaid Coordinator to see what assistance you can get. Medicaid is a long application process but in some states they will pay after your resources run out. You may also need to consult with an Eldercare attorney to explore your options and protect her resources to the best extent possible.
Second question: finding a doctor. See if your most highly rated hospital has a neurology center. Ask your other physicians for the best known neuro doctors in your area. You have to dig hard.
When you argue the case with your insurer be sure to point out that GBS has a long recovery period in many cases ranging from 6 months to two years or more. I hope this helps.

I think many others on this forum will help more with your nutrition question than me and it will depend on the overall health of your mother too. For me, when I was in rehab, I was given a balanced diet supplemented by multivitamin, olive oil, fish oil, and extra protein supplements. When I went back home I have continued with the multivitamin and fish oil and briefly with protein supplment. In my case, I lost all my muscles and so the protein was to help their regrowth. My doctor felt that the olive oil & fish oil would help on the myelin regrowth.

I am sure others will give you more ideas.

Frank

I live in Louisville. My best recommendation for a neuro would be to go to Louisville. I know some non GBS people who’ve had bad luck with neuros in Hardin County. I would think that U of L would be your best bet in your situation. They are a teaching hospital and tend to be more open to new treatments. They also are a bit more generous about payment options, writing off many non insurance funded bills. I believe others from the area on this forum also use U of L for their neurology needs.
I’ve thankfully not needed a neuro since I’ve moved here. Im 7 years post this month. I’d say Im about 90% recovered. It does get better. Just be patient and continue to read and be involved in the posts here. Ive learned more about this disease from the people here than I have from my drs.
Best of luck. Feel free to message me anytime since we’re so close. Im more than happy to help if I can.