Neuromas anyone?

    • Anonymous
      June 25, 2007 at 11:17 am

      Are neuromas (specifically in the foot) common post GBS? I’m wondering as I was diagnosised with one in my left foot that’s I’ve had for maybe a year or so. If you don’t know what one is I’ll include the definition I found on Wikipedia. I’d apprecaite any feedback if you’ve had one and how you took care of it. Thanks.


      Neuroma originally was defined as a tumor of a nerve. (Neuro- is from the Greek for nerve). Today, neuroma commonly refers to any tumor of cells of the nervous system. They can be either benign or malignant.

      The most common type is a traumatic neuroma, which follows nerve injury (often as a result of surgery). They occur at the end of injured nerve fibres as a form of uneffective, unregulated nerve regeneration; it occurs most commonly near a scar, either superficially (skin, subcutaneous fat) or deep (e.g., after a cholecystectomy). They are often very painful.

      Other neuromas can be categorised:

      Neurinoma (Neurilemmoma) – a benign slow growing tumor of the neurolemma (myelin sheath) of a nerve fibre.
      Neurofibroma (Schwannoma) – a benign tumor growing from the fibrous coverings of a peripheral nerve (see Schwann cell).
      Neuroblastoma – a malignant tumor arising from embryonic nerve cells in the sympathetic nervous system.
      A special form of neuroma (named Morton’s neuroma) occurs in the feet, near the distal metatarsal ends, by chronic pressure trauma to small nerve fibers related to gait; damaged nerve fibers are both fibrotic and hyperplastic.

    • Anonymous
      June 25, 2007 at 2:20 pm

      I have CIDP…diagnosed in 9-06 but can remember symptoms since at least a year prior.

      Yes, I had neuromas in my left foot. Ironically, the same foot my symptoms appeared. I had surgery to remove them about 6 years ago. I was on crutches for several weeks and swore I’d never have another surgery on my feet !

      When I was first diagnosed, I called the podiatrist that did the surgery to get my records just to make sure it wasnt something he had done.
      Well, it wasnt.

      I dont know if neuromas …mine were benign… have anything to do with this GBS/CIDP or not.


      good luck.

    • Anonymous
      June 25, 2007 at 6:14 pm

      Hi Kathleen I had a nerve biopsy in June 2005 and I am still hurting. I started physio a few weeks ago and the therapist told me I had a neuroma and scar tissue causing my pain. He did not explain what it was but I found this definition on the internet.

      “The term neuroma refers to a swelling of a nerve.”

      * Begins with numbness or tenderness in the foot, just behind the 3rd and 4th toes
      * At a later stage, pain, numbness, burning and tingling sensations can radiate around the foot.
      * The symptoms may appear and disappear spontaneously.
      * Severe pain may be present at weight bearing.
      * The patient may experience spontaneous shooting pains, which is often referred to as an “electric shock”. This can affect patients when are sleeping at night.

      There is different type of Neuroma. Mines I don’t know more then what the physio guy told me.

      He is doing some kind of ultrasound with gel in the area of my scar tissue which is right next to my neuroma. Will try to remember to ask him more question the next time I go see him.


    • Anonymous
      August 13, 2007 at 9:14 am

      i may have one of these , dont know. I get severe pain in bottom of left foot, after I am on it alot or if i put pressure on it. it’s the part of the foot that you would be putting pressure on if you were wearing heels. I had this before gbs, I think cheap shoes did something to it, or, I remember at a wedding many years ago we were doing the electric slide, and a big woman planted the pointy heel part right on the top of my foot! man, talk about pain. I hurt for 2 months after. of course, I was young, and never saw a doc. who knows, she could have broken something and it didnt heal right. all I know is this pain I get makes me limp and wince in pain if I put pressure on it the right way. maybe one day, I will have to visit the podiatrist.

    • Anonymous
      August 13, 2007 at 12:23 pm

      Good thread! I did not have pain in my feet before GBS. After being totally paralized except from the ankles down, I have the usual numbness left from the ankle down but I have some stiffness. I fell like I am wearing a tight sock on my feet. During rehab I did not really have alot of pain to take meds but felt like I was going to break something if I put any more weight on my toes to reach something in the top shelf. Bending my toes under to get up from the floor was very painful. Now after 20 months and that feeling slowly moving out and the stiffness giving in to more range of motion without pain, I am not at 22 months just able to stand up on my own without crawling to the nearest couch or chair to pull myself up on. Makes doing alot of things much easier. I am not having as much electrical shock pain either. I still have alot of swelling in my toes that movement is jerky and deformed like movement. Hard to explain but nothing found like a knot or tumors like you guys have found. I do have a few lumps in the palm of my hand that I am keeping an eye on. As far as my feet. I am probably the only ones that notices that when I stretch my toes up toward the knee they spread out farther than they ever did and all turn out away from the big toe. When I pull the toes up under my feet they are moving weird too to compensate for the swelling. I just think it is weird and I watch them move incorrectly often. I know I am bored and need to get a life. I also have the little donuts around the base of each toe that looks weird too. Swelling is uneven and gets worse when I have a flare up from over doing things. Oh we all need to right a book. I am not even going to mention the weird pattern on the skin that I see. I keep reminding myself that the first things to be effected is the last to heal. Am I that far gone that I have been entertaining myself by wiggling my toes? Now that is funny! Babies do that too! 😮 AM I GETTING YOUNGER?