MY Formula
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AnonymousApril 11, 2007 at 12:37 pm
First a little back ground, after seeing several doctors about my weakness and fatigue,I ended up at the Hospital of The University of Pennsylvania. I spent three days doing tests, the Doctors could not find the source of the problem, I was put on prednisone for nine months,that did not work, then I did Plasmapheresis, (15 times) no better.My neurologist and the EMG Doctor took my test results to a conference in a town in Italy where a Doctor from California diagnosed me with CIDP, this Doctor had four patients like me,so at the time there were four patients on the west coast and one on the east coast. About one year later I was the second person in the Philadelphia area to receive the experimental Immune Globulin, I spent five days in the hospital where I received one bottle a day, a few days after my release I felt great, I thought I was cured. That was not the case, so from then on I went to the hospital every five weeks for ten years. In 2001 after visiting my parents in Florida (for Easter) and at the urging of my father I started taking a formula of grape juice, apple juice and vinegar, by December I felt so good I no longer needed to receive the Immune Globulin, I still have the symptoms but my energy level is near normal. If anyone is interested here is the formula, one can of Welch’s 100% Concord grape juice concentrate (yellow top can), one can apple juice concentrate (I use Seneca), three cans of water,not six (I use filtered water), eight ounces of apple cider vinegar, mix. Take two ounces a day. If this has an effect please pass it on. jimmie
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AnonymousApril 11, 2007 at 3:38 pm
[QUOTE=MelodyL]Jimmie:
My husband will be on this tomorrow morning.
Will let you know what happens!!!
Thanks,
MelodyP.S. One quick question. Besides the tiredness, did you have the pins and needles and burning anywhere on your body (my husband has this in his toes)
Thanks, Mel[/QUOTE]no pins or needles. Atrophy of some muscles,at one point could hold pencil but when I applied pressure to write, the pencil sliped through my fingers.
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AnonymousApril 12, 2007 at 4:08 pm
let me reply to the damage to the teeth concerns, I have taken this formula for 6 years, I see the dentist twice a year for cleaning (no acid damage),my father has taken this formula a lot longer then me, no acid damage (he is 93, best bowler in his league beats, all the younger men). When I was diagnosed with CIDP there were 5 patients in this country, there were no forums like this one that I know of. I found this forum researching CIDP on WEB MD, my intention was to pass along my formula for those that it may help. Everyone is different,there-for this formula may have a different effect on evreyone. Be patient, don’t give up, it took 7-8 months for it to have an effect on me, may be different on other people.This will be my last post, if anyone wants to contact me, please do so by e-mail, I will respond . Good Luck to you all.
jimmie
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