Major surgery with CIDP

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    • #117703
      SandraP
      Participant

      Has anyone experienced problems with major surgery/lengthy deep anesthesia/recovery? Has your constant high inflammation rate affected recovery? This whole topic has had very little study because CIDP is so rare, but here is one medical journal paper I found about managing anesthesia in CIDP patients: https://jaclinicalreports.springeropen.com/articles/10.1186/s40981-019-0241-2

      The problem is that most surgeons have never heard of CIDP and have no idea that special attention must be given to CIDP patients. But the doctor I have seen about a possible shoulder replacement told me that my recovery would be unusually slow and difficult, my off-the-charts inflammation rate would interfere with healing, etc. He has urged me to go with pain management before risking surgery. BTW, I heal slowly from even small cuts and scrapes.

    • #117704
      SandraP
      Participant

      A search of messages here yielded only posts that are 10 to 12 years old.

    • #117705
      Jim-LA
      Moderator

      The following forum posts and their links may be of interest:

      Joint Replacement failing to adhere the Hip Prosthetic to the femur bone

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