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Hello Earlyduck,

Have you had any more tests done, MRI, Lumbar Puncture, bloods to clarify whether you have CIDP or not? If so, you will most likely be put on IVIG, which most people find helps a lot.

I have just been diagnosed with CIDP a few weeks ago after my walking became very difficult, the right arm was also having difficulties with strengt, feeling like RSI, and experiencing numbness, tingling in the legs, stiffness after standing up , problems with balance and fatigue. I received the  IVIG loading dose, over three days in hospital, combined with IVMP, a strong Prednisone and have been feeling much better since then. Walking is almost normal, no more pain, swelling in foot has gone down, stairs are easier, Although I also side effects from both treatments: headache, high after the prednisone, blood pressure is up, heart rate is up.

I hope you have made progress with finding the cause of your feet pains and the neurologist has given you an effective treatment to help you dealing with this.

All the best,

Petra

Hi, early duck. I am not saying you don’t have CIDP but low testosterone can cause the symptoms you are describing it may be worth talking to your Medical Doctor

Hi earlyduck,

I’m really sorry to hear what you’re going through. It sounds like a challenging and confusing time, but it’s great that you’re working closely with your neurologist to figure things out.

It’s completely understandable to feel like your world is turned upside-down, especially when dealing with something as complex as CIDP or potential nerve damage. The physical symptoms you’re describing, like walking on raw nerves or glass shards, are very common in conditions like CIDP, and it can definitely affect your mood and stress levels.

As an electrician, being on your feet all day must make things even harder. One thing that’s really helped me (and others with similar conditions) is learning to manage stress—especially since stress can make symptoms worse. I’ve found that taking regular breaks, stretching, and practicing deep breathing can really help. It sounds simple, but it makes a difference.

When it comes to mood swings, it’s important to acknowledge them but also find ways to keep them in check. For me, having open and honest conversations with family (like your wife) about how you’re feeling has been key. It’s tough, but support systems are critical. She’s probably feeling the strain too, so try to find moments to connect and let her know you appreciate her understanding.

Also, don’t hesitate to ask your doctor about medications or treatments that may help alleviate both your physical and emotional symptoms. They may suggest something to help with pain, fatigue, or stress.

And lastly, you’re not alone. There are many of us who’ve been through similar struggles, and it’s okay to lean on the community for support.

Stay strong, and don’t hesitate to reach out if you need any advice or just someone to talk to. You’re doing the right thing by seeking help and staying proactive. Good luck with your diagnosis journey!

Take care.

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