Looking for expert GBS neurologist in Los Angeles, CA

    • Anonymous
      April 20, 2012 at 9:01 pm

      My husband has been suffering with GBS for over three years now. Does anyone know of or have been or currently being treated by a competent, qualified, expert neurologist they can recommend in the Los Angeles area? My heart goes out to ALL of the GBS and CIDP sufferers going thru this. Being the wife of one I see every day and feel my husband’s pain and struggles with this and know hw you feel. Any help or suggestions are so appreciated. Lisa F.

    • MarkEns
      April 26, 2012 at 4:26 am

      Hello Lisa,

      UCLA, USC, and UCI all have well regarded neurology departments with specialists in GBS and other neuromuscular conditions. My doctor is with Kaiser Permanente in Downey. I consider him to be very good. If you are with Kaiser, let me know and I will provide his contact information.

      ~MarkEns

    • Anonymous
      April 26, 2012 at 3:55 pm

      Mark, thank you for responding to my post. Ironically, we “were” just with Kaiser (for a year), but then I decided I needed more options as far as going to where need be and not confined to Kaiser, so we changed to UnitedHealthcare. With that said, I have been working on trying to get authorization for my husband to be seen at UCLA; I have had a little feedback, the process is slow, but there has been “progress” toward that end. I have been told by contacts and this foundation here that is working with me regarding UCLA and Dr. Michael Graves, Perry Shieh, etc. So, its hurry up and wait. Hell, what’s the hurry, right? (as one of my husband’s doctors unconsciously questioned me!? Unbelievable)… but I continue to push. Thank you for your post and information. I hope you are in a much better place with your GBS – being as you’re on this ‘site’ I can assume you’re dealing with this. MY SYMPATHIES AND HEART GOES OUT TO YOU. I hope you get there, if not already! :o), Lisa.

    • MarkEns
      April 27, 2012 at 2:49 am

      Lisa,

      Thanks for the kind words. Actually, I have CIDP that is well-controlled and with minimal deficits, so I am definitely in a good place. My sympathies to your husband and you that he is not.

      You might suggest to your neurologist that if there is an continuing disease process, rather than just residual deficits, then the delay means that much more damage will occur, making it even harder to recover. Hence, the hurry.

      Godspeed in finding treatment soon,
      MarkEns