Just diagnosed with GBS!

    • cswontstop
      May 17, 2017 at 11:30 pm

      Hey there! Today I spent all day in the hospital because my legs have been numb and my legs give out before I make it up an entire flight of stairs. I had a CT scan and spinal tap done. the spinal tap proved that I did have GBS, but they said it was a mild case and it would go away on its own after 6-8 weeks. they did advise to keep an eye on it because if it gets worse I will receive the IGB (I don’t remember what it’s called haha) IV antibody treatment. Are these results typical to anyone? I’m a little worried this will progress!! 🙁 any advice and tips are welcome!!!! Thank you 🙂

    • Jim-LA
      May 18, 2017 at 12:06 am

      Please see the following thread for some advice and answers to your questions:
      https://forum.gbs-cidp.org/topic/damm-once-again

    • bcproblems
      May 29, 2017 at 9:14 pm

      hi I’m new here.. to sure if I’m even a GBS example.. But for last two months nerve pain both sides of my body esp at night i walk with a gait to left..Neuro said i have polyneuropathy but never said what it was from.. i been sober 9 years he said it was from the alcohol.. tho i asked another doc and they said no thats a wrong diagnosis..The last week was admitted twice to host for breathing problems.. they took cat scan glass on lungs they say its pertussis .. the nerve pain is spreading through out my body just curious do i have gbs? i know I’m probably gonna have to get a spinal tap i mentioned that in hosp and said i don’t need one.. i don’t even know what doc to go to now..on top of this back problems can hardly walk and my heart is reduced cause of the breathing problems.. help!!

    • Jim-LA
      May 29, 2017 at 11:07 pm

      Please tell us where you are located, maybe someone here can recommend a good Neurologist or treatment center.

    • bcproblems
      May 29, 2017 at 11:19 pm

      astoria queens ny.. thank u.. does it sound like i have it i have a lot of the symptoms imv very worried

    • Jim-LA
      May 30, 2017 at 12:32 am

      Here is a good summary about the various autoimmune disorders. Perhaps it can help you determine what you might have and what to do about it:
      http://www.nlm.nih.gov/medlineplus/ency/article/000816.htm

      More details (symptoms, diagnostic tests, etc.) about CIDP can be found here:
      http://www.gbs-cidp.org/wp-content/uploads/2012/01/CIDP.pdf

      Please contact the GBS/CIDP liaisons below for a referral to a good Neurologist near you:
      NEW YORK (QUEENS)
      Christine Manniello Astoria, NY 11105
      (917) 414-2069 chris02957@aol.com
      Or
      Les Skolnik Astoria, NY 11105
      (516) 659-4729 cell lesjs1031@aol.com

      There is a Center of Excellence near you too:
      Columbia University Department of Neurology, 2nd floor
      710 W 168th St New York, NY 10032
      See if you can get an appointment with Dr. Thomas H. Brannagan III, MD here:
      http://columbianeurology.org/profile/thbrannagan

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