IVIG cost

    • Anonymous
      March 27, 2009 at 1:05 pm

      I was looking at my Explanation of Benefits & realized that Emily’s IVIG has more than doubled. I called the home care company to make sure they were billing for the correct amount & they say there was a price increase last year.

      Emily gets 20 grams of Gammaguard liquid & is now being charged a little over $4000 per 20 gram infusion. That does not include any nursing fees.

      When she first started getting infusions the IVIG was a little over $2000 (like $2000 and some change).

      How much do other people pay for what brand & what amount?


    • March 27, 2009 at 1:51 pm

      Kevie is $8k with nursing and supplies for 80g.

    • Anonymous
      March 27, 2009 at 3:31 pm

      Mine, for 80g is 10,000 roughly. ๐Ÿ™

    • Anonymous
      March 27, 2009 at 6:56 pm

      I was paying $13,000.00 a bag and I had 5.This was back in 2006 (Steve)

    • Anonymous
      March 27, 2009 at 9:50 pm

      I had 5 days/bags of 40g and insurance was billed $28,000 (my co-pay $5,300). Liquid gold. While incredibly costly, at least I can walk again, use stairs and get up from the toilet!

      Let’s all hope that stem cell research can reduce the cost of this amazing substance.


    • Anonymous
      March 31, 2009 at 2:14 am

      In 2004 Medicare was paying $ 2,200 for 50 grams.

      My Blue Cross pays $ 10,000 for 50 grams of Gammagard S/D.
      The regional IVIG supplier includes payment for nurses/all medical supplies to my house.
      I can now walk and the pain is tolerate. Before the pain knew no limits.

    • Anonymous
      March 31, 2009 at 6:32 am

      I get Gamunex and it costs $6200.00 for 50 grams, not including nursing fees. I get this twice a month. My insurance covers it 100%. It sure helps a lot. ๐Ÿ™‚

    • Anonymous
      March 31, 2009 at 8:56 pm

      Since December the #’s are jumping big-time. Sigh.

    • Anonymous
      April 1, 2009 at 3:51 pm

      Gammaguard – I think it’s almost $1000/g not including nursing costs.

    • Anonymous
      April 2, 2009 at 12:21 pm

      I get Gammagard also and mine is 8,700 for 70 grams. That is for the drug only.

    • April 2, 2009 at 1:00 pm

      Is it possible you mean $100/gram. Man if it is $1000 a gram it better come with lunch, dinner and one hot stripper (male) nurse that cleans the house too!! I would even make him clean the frog tank too!!!!! BTW, how are the frogs?

    • Anonymous
      April 2, 2009 at 2:31 pm

      Yes, obviously I’m horrible at math and sadly that’s actually the second time I’ve done that with the cost of IVIg. Sigh. I did actually pass Calculus but I have no idea where those brain cells went…

      Frogs are well – still singing and making babies. I’ve got a handful of tadpoles the size of pinheads that have somehow managed to survive several weeks now. It’s kinda cool – they have eyes now and thats all you can see floating on the water – two black eyes. (do you hear the music from the Twilight Zone?….) ๐Ÿ˜‰ I also got a promise from the pet store to take them if they get to the 4-legged stage. Whew!

    • Anonymous
      April 21, 2009 at 8:25 am

      I get Gammaguard Liquid and with the 50 gm a day for two days, it cost about 21,000. Now after the claim goes through it’s about 9,500 for nurse,supplies,and medication.

    • Anonymous
      April 21, 2009 at 8:29 am

      you get a total of 100g, how often ?

      I’m just curious…I get 40g every two weeks…a total of 80 per mo and I know its not enough.


    • Anonymous
      April 21, 2009 at 10:09 am

      Yes, 50 each day for two days every four weeks.

    • Anonymous
      April 21, 2009 at 2:21 pm

      see, that sounds right…THAT is what I need !
      I am so frustrated !

      How far is St Joe from Omaha ? ๐Ÿ™

    • Anonymous
      April 21, 2009 at 6:51 pm

      Wow, I see huge variations.
      What is charged and what is payed are two different things.

      Every month my EOB pays out $13300 for 170 grams. that $78 a gram.
      My HC company buy’s in bulk and ships to me. 160K per year at that dose.
      It won’t take long to hit the cap.

      Remember the TV show the $6million dollar man. Well, I am sure some will outdo and probably have already outdone that til its over.

      Supplies are on another EOB.

    • Anonymous
      April 27, 2009 at 11:54 pm

      Three years ago Medicare started denying IVIG to patients and at it again. I must answer long questionnaire on how IVIG helps. Insurance company wants to know if the drug is working/worth the cost.

      I’ve gotten 6 IVIG infusions monthly for 4 years.
      One infusion of 50 grams is $ 10,000.00 X 6 equals $ 60,000.00.
      My Blue Cross pays for my drug through the Pharmacy Coverage I have and that has no lifetime caps. Thank goodness””
      I changed my Blue Cross medical over to a no-limit policy. Higher co-pays but in the end I’m covered. It seems strange to think $ 2-5 million wouldn’t be enough for my health concerns. In this day it may not.