GBS+Cushing's Syndrome

    • Anonymous
      February 12, 2012 at 12:01 am

      Hello all,
      I am wondering if any other GBS survivors here have been diagnosed with Cushing’s Syndrome.
      After struggling for a diagnosis for thirty years, I finally have confirmation this week.
      I now know based on my symptoms and how I felt prior to my collapse and paralysis with GB in 2000 (and who of us forget how we felt in those weeks and days leading up to our GB?) that it was my Cushing’s symptoms that were ROARING right before my collapse.
      Soooo, now not only am I one of those 20% of GBS survivors who have had an incomplete recovery I now have a diagnosis of an illness that hits 1 in 1 million. Yay!
      Ahhhh, trying hard to keep a sense of humour…………..if anyone out there has had the same diagnosis I would love to hear from you………I am in early days and on the fast track to an endocrinologist, then imaging to find out where the tumor or tumors are (probably adrenal), and then hoping I can successfully beat this monster.

      Thanks all for listening,
      Cee Gee 🙂