Sometimes, I got headaches from the ivig. Perhaps, you want to find out what you had in the past if it was premixed etc. All the pre/post infusion stuff may help as well, like drinking liquids, benedryl, rest, etc. may help..
It is possible its unrelated to the ivig, like seasonal sinus stuff???
Deanop

I have had headaches with IVIG, certainly have had Flebogama as well.
Tylenol was sufficient to stop them. Might have had 3 or 4 times after IVIG session over a period of 4 days.
I haven’t had them anymore. I’m on Kiovig now.

About cutting out on IVIG or decreasing the frequency. I don’t recommend it.
Every patient is different I know, but something could trigger the OMINT system and levels of linfocytes could get too high sending you into an onset.
It happened to me when I stopped for 2 months.

Take care,

Marcio

Don’t know how OMINT ended there, sorry. I meant to say immune system.

Linfocytes are our white blood cells. They are the ones who attack the myelin sheath ([url]http://en.wikipedia.org/wiki/Myelin[/url]) of our nerve cells. Broadly speaking, they are responsible four our CIDP/GBS. At the same time, they protect our bodies from intruders like viruses, bacteria, etc…We can’t live without them but the more numerous they become the weaker we feel.

Cheers,

Marcio

I think mpocciot means lymphocytes.
Are you premedicating?

I was premedicating (benadryl [doesn’t work for me at all even for allergies anymore] tylenol and hydrating very well) and still got reactions after a while. It got so bad I stopped treatment last year because I was sicker from infusions than CIDP. Migraines were so bad I was vomiting. I’ll probably have to go back on infusions quarterly to help with a flareup and to help this friggin medicare gap (if I have outpatient infusions I go instantly into catastrophic and avoid thousands in prescription copays).

Water, water, and more water. I drank lots before, during and after my treatments. Headaches went away.