Feet in much pain

Yes rest is my best friend, I know this and I try to listen to my body when it is shouting “[B]lay down now lady” [/B]but it is so hurting to stand up again, I have also lack of sleep, I’m happy if I get 5 hours sleep, if I sleep more I get very tiered and seems have trouble staying awake all day long. What it is I don’t know maybe because I give my change to relax then my body thinks he has a break all day long *LOL* I have been trying to get to my doctor but he don’t call back, not yet at least, my numbness is changing and I have more and more dead spot´s in my legs and thigh and constant diarrhea, They think the diarrhea is because of diabetic meds, but it is taking big strength from me when you eat and need of the bathroom right away is not what it should be. But maybe I loose some pounds with this *LOL* I’m trying to see all the good things in it 🙂 I would love that my doc would call me, it is not many good nerve doc here in Iceland so you have to stick with your doc and mine is human and he talks to you in Icelandic not in some kind of Latin. As you all see then I’m in need of talk and talk, okey I say it to you I’m scared, I don’t say this things to others around me, they have tolerate so much while I was sick so I don’t want them to worry, Like Kit say I’m working my ass of, but I’m seeing the end of it now, I have sold and made most of the candles that are going for sale for this season, but what happen when I get relax and are not tipping on my toe to keep me walking, I went to the hospital to have me and my hubby weighted and the nurse put up very worried face when she saw me, and when we was alone she asked lot how I have been she felt I looked so much worse then for 2 weeks ago. So something is wrong, I feel that my balance is less, I have not fall, but it is very close to it. just getting out of car then I take time to find my point to stand. I have rest mostly for 2 days now only done the important things I have to do, I donut feel much change in this balance or burning feeling. but it is not worse. So maybe I just need to pull my out of this with time, as I said before I hope I can reach the doc sooner then later to do some test. Sorry for so long post maybe it is about nothing but I had to talk to some one, I keep my head up and tell every one I’m ok, I cant let others be afraid if this is nothing only me and my work mania.
Love to you all, you are my shoulders for me to cry on, I know all of you have big shoulders 🙂 so I can lean on them.
Bigg hugs and love from Iceland.

Thanks for your help Im looking into this, Im getting worse, i have more and more numbness, my toung is now nubming up and food is like metal, so I dont eat much, Im loosing my feeling in my feet and hands, I think Im getting little set back, I hope this will go over if I take it easy. I have been working tomuch and this is just the feed back of this and my body is telling me enough of this now you just be lazy few days. I can still control my hands but I my strength is getting weaker. and my knees are acting like they are weaker. I will get up from this, I have not told my family the hole truth about this for my hubby is afraid I get paralized again, but I dont think so. So Im not afraid just frustraiting to have to have so much numbness again.
But thanks again and Im reading all this imformations that you gave me.

Hi Gabrielle and every one, Im on my way to the hospital now, got to my nerve doc and he told me to get straight to hospital, so Im on my way and guys see you in the evening then I tell you all how it went. love you all and take care.
xoxoxoxoxo
Helga

Hi every one… I’m Steini, Helga’s hubby and she asked me to let you guys know how….
I took Helga to the hospital today and they did all the same tests they did when she got the gbs one year ago and then decided to give her ivig’s. I have been nagging in her to talk to the docs lately as her sympoms has been a bit too much similar to those she had when she got sick a little over a year ago but she always seem to have explainations like… this is just over working or this is just because of the meds and and so on:-) She is problably trying to make me feel better… but those speculations of mine are far worse than knowing so it’s a small version of catch22:-) But atleast now they started the ivig right away and the nurce told us they were giving her 0,4 grams pr/kilo (sandoglobulin)and would do so for 3-7 days?

Anyway I will visit her again tomorrow and let you know how she is. I will also try to talk to her doctor. Helga sends her love. Best regards and thanks for being there, Steini

Hi all
Helga is finishing her 3rd day on the IVIG and the numb feeling is somwhat fading end more of her “ususal pain” as she calls it is getting back. Her toungue is getting back to normal so we are more optimistic and hopeful she is getting better and hopefully winning this battle. We just take this a day at a time and if the ivig will go well… we are planning on going to a big concert tomorrow and I will then borrow her for a couple of hours and then get her back to the hospital right after the show. But now the weather forcast isn’t to helpful as they tell us there will be a big storm tomorrow so I don’t know yet if I will be able to go… as I have to drive over a high mountain to get to Reykjavík(50km away) where the hospital(and the concert) is. Anyway.. that is a problem I look into tomorrow:D Just wanted to let you guys know and thank you for all your kind wishes.
Helga sends her love.
Until later… Steini

If interested in some pics here is a link on my blog…(you will aslo see some strange icelandic letters.

[URL=”http://www.skrifa.blog.is”%5Dwww.skrifa.blog.is%5B/URL%5D

Rgds, Steini

ps. Sorry! Don’t know how to insert a link properly

Hey guys Im home and feeling little better getting stronger feet, my normal pain is where it should be so Yes im glad, I was sent home in vacation but much be very alert about if I get fever then I have to go to the hospital again my white bloodsells vent down to danger level so they did not want me around in the hospital so I did not finsh my IVIG, they dont know why it went down but could be becouse of the IVIG. So Im home and Im glad.
love you all and thanks for all the comment and good wishes.
xoxoxooxo
Helga

Chris, you dont think I over due my self 😀 I know it I tend to do that but I will be more aware of it now how much I can put on my self, I learn, Im a slow learner but it comes 😀 Happy new year !
xoxooxoxoxo
Helga

Im out of the hospital and my white bloodsell are ok. I dealing also with clostridium difficile and they think maby it have trigger my onset of GBS II. Im meeting with some speacialist next week to find out more. They dont want me to do more IVIG my body dont seems to handle it again. They think my bloodsell dropped becouse of the IVIG.
Have you heard of this before or is it just in my doc head?

xoxooxoxoxoxox
Helga

Thanks Gabriella, it is much relive on my hubby that Im home for good (some one needs to cook:D ). Yes every little bit helps when you are looking for some reson for things. Im still pretty numb but getting stronger in hands and feets;)
xoxoxoxoxoxo
Helga