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    • Jim-LA
      July 12, 2022 at 2:16 pm

      The GBS-CIDP Foundation is co-sponsoring a webinar to review some of the newest remedies. The webinar can be watched on-demand at NeuroCareLive.com. If interested please sign up here:

      https://tinyurl.com/mtdfmwzw

    • pammy
      July 22, 2022 at 4:28 pm

       

      Jim,

      Hi Jim

      I have contacted you before since my exacerbation of CIDP post covid.

      I saw on web cold laser therapy.  I searched here , found nothing.

      Are you familiar w this being posted here or anywhere for CIDP neuropathy ?

      Hope you are doing well….you amaze me.

       

      Pammy

      • Jim-LA
        July 22, 2022 at 8:20 pm

        Hi Pammy, the clinical trial for this possible pain treatment was “terminated”. This would mean it didn’t work as expected for diabetic peripheral neuropathy. You can review the clinical trial here:

        https://www.clinicaltrials.gov/ct2/show/NCT04006392

        If anyone has experience with this laser technique or something similar, please chime-in.

    • pammy
      July 23, 2022 at 10:20 am

      I found this Jim. Of course not gov clinical trial. I also found discussions on Mayo Clinic forum. Lastly, although my original dx at nyc center of excellence, on more than one electro studies was Cidp as described almost verbatim in this article, but post covid, what is described here as sfn seems to be manifesting now ie.thinning less elastic dry skin in hands lower arms.  Do not experience ischemic pain, cold extremities. Tightness in ankles,jts,  hands feel like tight glove, numbness, loss of balance worsening.  Docs here just play w ivig dose, frequency, wont consider other drugs ie. ritux, or will they acknowledge covid may have affected condition. ” No clinical data to support that “. Of course not, no studies have been done !

       

      https://www.hmpgloballearningnetwork.com/site/podiatry/can-low-level-laser-therapy-treat-diabetic-peripheral-neuropathy

       

    • Jim-LA
      July 23, 2022 at 1:51 pm

      Pammy, the ten-year-old article you cited was from the Arizona Institute of Footcare Physicians. The same organization participated in the clinical trial I cited. I would personally place more importance on a study that included the participation of neurologists knowledgeable in CIDP (or as a minimum, PN).

    • pammy
      July 23, 2022 at 4:19 pm

       

       

      Your so right.  I didn’t notice the date.  Thank you for the input.

      So desperate for  some new treatment.

       

       

       

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