Denied SS Disability

Jason, I quit my job in 2008 and haven’t had any insurance since. I tried to get it on my own but Blue Cross denied me because of my history with GBS.

Rhonda, With no insurance I am on limited meds – only amitryptiline. I did submit my notes of every little ache and pain.

Until I can get a good round of tests done (EMG/NCV etc.), I don’t think anyone will look at me twice.

I am waiting on a lawyer that I contacted to see if she will take my case. In the meantime, I’m having to keep looking for a job that I think I can handle without losing it – as what happened to the last two short time jobs I’ve had the past two years. I’m overqualified for receptionist type positions but that is what I think I can handle. I used to be an executive assistant for a country club (they had stairs and 90,000 sq. feet I had to get around in).

Thank God one of my sisters is helping me keep a roof over my head. I’ll be 53 in a couple of weeks and I know age is not helping me with my health or finding a job.

Thank you all on this forum for being there for me!

I’m waiting to hear from an attorney to see if she will take my case… not putting much hope into that. I’m back to pounding the streets for a job. This is how it has been since 1997 for me and I suppose I will just have to continue this until I die – back into the denial stage. I’ve got an interview tomorrow that I’m hoping will be a low stress environment because the job could be awesome with good pay and benefits! Its for an Executive Administrative Coordinator for a family outpatient drug treatment center. I am going to walk in with my cane! Maybe I can get counseling while I work there?!?!

Another confusing day… but the weather is so beautiful I can’t help but thank God for this day – hopefully without earthquakes 😮

Life is amazing with all of its turns… I had been on a waiting list at a free clinic for counseling. I got a call yesterday and went 2 hours later for this counseling. This is a church place with a big community center and the docs are all volunteers. I met this most precious older woman with a PhD… long story short, I go next Wednesday to see a neurosurgeon that she set up an appointment for me. She was aware that a spinal tap is needed to diagnose things – I wonder if this is the way to diagnose CIDP? I am so excited and grateful!!! This will not cost me anything 🙂

She also gave me a lawyer place to do more on my SS filing and bankruptcy – I believe that will be very low cost if any at all. I will call them Monday. I will also see this counselor in two weeks and she recommended a ‘revovery’ group for me to attend which I will do starting next Thursday – for free.

I had started a temp job yesterday but left at noon and called the temp agency telling them I won’t go back. It was not an environment for me at all as I couldn’t speak and the work was very complex. (I don’t think I could do the medical billing stuff from home as you have to learn coding and stuff.)

So if I hadn’t left that temp job, I wouldn’t have received the call to go to counseling right away and meet this ‘angel’ counselor. My birthday is next Tuesday and this all is the best present from the Universe that I could have ever received.

I was so wound up yesterday and got to sleep in today with thunderstorms – the best sleep ever, oh and 12 hours of it!

Thank you Alma for the BD wishes! I had a blast yesterday but am really paying for it today.

I just saw a neuro today (at a free clinic) and he was so very wonderful with his exam and explaining. I still (and probably wont ever) have any reflexes. The doc told me to keep using a cane. My left side is worse than my right as I could not feel the tuning fork or pin ***** at all on my left foot. I was very surprised when he said the nerve damage I have is pretty severe and none of this will change – only get worse as I age. I’m now 53 and my body is probably 10 years older. I am also having memory issues and such which is all related to being older – really sucks! In my mind, I am still 27. He understood my fatigue issue.

One thing he did diagnose me with that is new is lymphedema as my feet and ankles get very swollen. He instructed me to [B]always wear compression socks[/B]. Also diuretics will not help this at all. He also said what the painful ice cold feet at night condition is called but I cannot remember it. I may call the clinic and ask them to look at my chart. But there is nothing to help this.

I cannot use his information officially for SS… but will keep on trying!!! I’m waiting to get an appointment with a low income legal aid place to review my SS case and bankruptcy filing. One attorney I called never called me back. I know I don’t have enough documentation but am keeping the faith I will eventually get SS (hopefully before 65 *lol*).

I’ve been venting here for many, many years and want to support everyone in our GBS family. You all are priceless to me 🙂

Blessings to all!

No call from an attorney yet so I filed an appeal on my own. SS called and did want the information from where I had gone this week. I told the lady that I have no reflexes and the doc they sent me to barely checked only one spot. She also added the lymph edema and noted fatigue comes with that.

So it is with renewed hope that I post this! Thank you all for hanging in there with me 🙂

I finally have an appointment with one of the best SS lawyers in my area on Nov. 23!!! Who knows, maybe SS will approve me before I see the lawyer?!?!?

Thank you all for your support 😀