Cytoxan Follow Up – 8 Days Later
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Had my first Cytoxan treatment last Thursday. Day 1 and 2 no changes. Day 3 slight headache, upset stomach and lower intestinal distress. Day 4 Better but not much. Day 5 Good day but very tired at night. Day 6 Good. Day 7 and 8 Very good with energy and brighter outlook. Hope it keeps up. I will be getting one treatment a month for 6 months while maintaining bi-weekly IVIG.
Hopeful!
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AnonymousSeptember 22, 2010 at 11:48 am
While I was at my worst I had cytoxan infusions once a month for 9 months. I was also having solumedrol infusions every week & IVIG in the beginning. The cytoxan arrested my CIDP somewhere around the 5th month & then the healing began. But it is a slow process to heal, allow up to two years, as that is how long nerves can heal after they have been damaged. If you have any axonal damage, those nerves most likely won’t heal. I have been off of all treatments now since 2003, when I had my last cytoxan treatment.
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AnonymousSeptember 22, 2010 at 1:50 pm
[QUOTE=Pam H]While I was at my worst I had cytoxan infusions once a month for 9 months. I was also having solumedrol infusions every week & IVIG in the beginning. The cytoxan arrested my CIDP somewhere around the 5th month & then the healing began. But it is a slow process to heal, allow up to two years, as that is how long nerves can heal after they have been damaged. If you have any axonal damage, those nerves most likely won’t heal. I have been off of all treatments now since 2003, when I had my last cytoxan treatment.[/QUOTE]
Pam, were you left with any axonal damage from your CIDP? What is your daily status like today? How do you function, do you need assistive devices at all?
Do you still get CIDP type fatigue?Thanks,
J. -
Hi everyone, I have my 2nd cytoxan tomorrow. Thanks for your comments. I tell you, I am even more hopeful than before. Pam, my feet have been numb for the past 8 years and I think you are right about them not healing but I can live with that if I can get past the fatigue I will consider the treatment a complete success!!
I will keep you all updated with my experience and Thank You All!!!
David
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AnonymousSeptember 23, 2010 at 6:01 am
[QUOTE=davidinsd]Hi everyone, I have my 2nd cytoxan tomorrow. Thanks for your comments. I tell you, I am even more hopeful than before. Pam, my feet have been numb for the past 8 years and I think you are right about them not healing but I can live with that if I can get past the fatigue I will consider the treatment a complete success!!
I will keep you all updated with my experience and Thank You All!!!
David[/QUOTE]
David, has the fatigue improved already?
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