Comprehensive notes from 40 yr old male in NYC, dx 2001

I was on this forum years ago but thought I would re-activate. Interested in trading notes on therapies/diet/trends/exercise etc. My story:
– CIDP, recurring but slow progression, since 2001
– 40 yrs old, male, living in Manhattan
– Diagnosed after a trip to Brazil. I got vaccinations but separately also got a very bad traveler’s bug on the trip (likely from water), perhaps Giardia. I progressed very quickly, from zero symptoms to having a hard time walking within 2 months time. Had nerve conduction studies and spinal tap to confirm dx.
– Currently receive 140 grams of IVIG over 2 days every month, over about 4 hours each session, max rate about 200. Was on prednisone for a short while but the side effects seem not worth it for me.
– I used to get raging headaches lasting about 30 hours, now they are mild and not incapacitating, read below. At first it was 3 days after first day of infusion. Later it was 5-7 days after first day of infusion. The main way for me to avoid is DRINK LITERS OF WATER. I will drink close to 5 liters of water in 4 hour session, but it does wonders. The rate also matters, I can go up to 160 without much trouble, 200 is pushing it but I can manage if I am doing the water thing.
– I used to take alpha lipoic acid, colostrum, fish oils, etc…can’t hurt but I didn’t see significant difference.
– Biggest factor affecting the progression is stress. Try to keep it down.

I’ll add more to this post later on exercise, etc. Very interested in diet discussions.