CIDP/CISP

I am on the CIDP side of CISP, onset of symptoms end July, diagnosis end November/beginning December. I had two courses of IVIg with some improvement in my feet but the benefits started to weat off quickly. I have troublesome cranial neuropathy and lower spine inflammation. Now on steroids having nearly completed two weeks out of 8. All bloods essentially normal. Nerve conduction studies revealed pronounced demyelination. Any similar experiences? Would be interested to hear.

Thanks