CIDP and pregnant

Hi all,
I usually do not post anything, but this forum was a huge help when I was first diagnosed. Just wanted to share my story for anyone else out there.

I was diagnosed 4 years ago with CIDP, at the time I was 23 years old. I was hospitalized and put on IVIG. Since then I started having infusions every 6 weeks, till I started cyclosporine (an immuno supresent) and after that I was able to spread out the infusions to every 12 weeks. With the exceptions of having to have the infusions and the side effects of them I have been doing extremly well! I was always worried about what would happen when I wanted to start a family and unfourtunatly there is no way anyone could let me know. Also, there is not much out there about CIDP and pregnancy. So I wanted to put out there my experiance.

I am currently 27 years old and 18 weeks pregnant. I have been doing GREAT, off all meds!! I have not had to have an infusion for 16 weeks and besides some tingling no other symptoms like I usually have (with the exception of morning sickness)! According to the doctors (neuorologist and high risk ob) I can still have an IVIG infusion whenever I fell I need it. They just wanted me to try and make it out of the first trimester before getting one. The high risk ob says there is no reason I should not have a perfectly normal pregnancy, but they will still keep and eye on me. They did say that after giving birth I may have a bad relapse, but we will deal with that then.

I know that this disease is fickle and all our stories are unique, but I hope mine may ease some worry in some young woman diagnosed worried about not being able to start a family. I will continue to update on how the rest of the pregnancy and after baby is born.

Thanks everyone on this site for sharing your stories, and helping me when I needed it.

Stupid pregnancy hormones almost crying while writting this 🙂