CellCept Question

    • Anonymous
      December 5, 2006 at 10:10 am

      I am on 2000 mg of CellCept per day. I take 1000 mg twice daily on empty stomachs as prescribed.

      Although I have been okay the last couple days, I have been quite nauseated.

      I’m wondering if anybody else is on CellCept and how you combat being nauseated. I’ve been thinking about taking 500 mg four times a day. Also, I’ve thought of experimenting by eating a little bit with the pills.

      If anybody has been successful, please pass on your wisdom.



    • Anonymous
      December 5, 2006 at 10:42 pm

      I’m curious to see how this med works… they have mentioned prescribing this for me….

      How does this work as a treatment? Is it an immune system suppresent? An inflamitory? I’ve heard that they use it in conjunction with Chemotherapy…

      And as Peteacher1 asked… what are the side effects?

      Thanks in advance

    • December 6, 2006 at 6:34 am

      I also take two doses of a 1000 mg of cellcept a day and had a problem with the nausea, the doctor can give you something for that. I was told to take it on an empty stomach, I believe it’s one of those have to kind of things.
      Cellcept is usually given as an anti-rejection drug for people who have had a kidney transplant, so basicly slows the immune system down. After trying alot of different combination of drugs I take the cellcept with either smaller treatments of the IVIg, or solumedrol in an iv form. The cellcept has made a bigger difference in slower the CIDP down in me. After a time the nausea has gotten less.

    • Anonymous
      December 6, 2006 at 7:54 am

      Hi Dennis, danlwil and herself – I have been on CellCept for a while and seem to be past the point that it gives me nausea – it just seemed to lessen and then go away – I had anti-nausea med from the doc – got to where it wasn’t necessary – found out by forgetting it a few times. CellCept’s name gives a clue to its mechanism – it “takes” (kills) the cell – thus CellCept. One thing I have had problems with – low white cell counts in monitoring lab work – DocDavid explains that CellCept supresses formation of bone marrow and the early indicator of that is low white cell count.
      i think taking the med four times a day wouldn’t be a great idea – the instructions from my neuro were to take it “one hour before eating, or two hours after” – it may be difficult keeping track trying to do 4 X/ day. Also, taking it with food can cause a 40% less effective absorbtion rate according to product info. Hope this helps, Bonney

    • Anonymous
      December 6, 2006 at 12:22 pm

      Thanks for the responses.

      Dan, hopefully, I will be able to decrease my IVIG infusions with the use of CellCept. I don’t do Chemo. I’ve been every three weeks between infusions. Earlier this spring, I went to every 4 weeks and found it was too far apart.

      Bonnie and Herself, do you check your bloodwork weekly? My doctor wants me to, and I am getting rapidly tired of that! However, I will do it. Just seems a bit of overkill to me. My WBC has gone down, but still am in the lower end of the normal range.



    • Anonymous
      December 6, 2006 at 9:24 pm

      Great info…thank you

      So far I’m on once a week Soludedrol, then every other week…

      If Solumedrol is effective, can they continue that longterm, or is a med like Cellcept a better option?

    • December 7, 2006 at 7:02 am

      The blood work is very important, have to make sure everything is functioning all right. On me it’s checking my kidneys, Tcells and liver. I hate needles with a passion but you gotta do what you gotta do.
      My doctor said that there’s a chance that the cellcept might be enough to keep the symptoms as bay, that sometimes it might take awhile. Otherwise we may have to continue with a combination of drugs. Is any one making do with just the cellcept?