i’d love to make contact with other’s in my area– to hear about what doctors and treatments they have.
please feel free to contact me on the forum or privately.
thanks much, alice
March 6, 2009 at 2:20 pm
My name is Scott Newel. I used to live in S.F. in in the 80s and 90s, went to S.F. State, worked at various hotels, then moved to Berkeley when I got married. I’ve enjoyed reading your postings. Following your difficult disease course has helped me deal with my own milder symptoms. I was diagnosed with CIDP in September by neurologist Dr.Mahadeva a Kaiser Doc. I have had one course of Ivig and am now on Prednizone. Neither has been effective. My email is: