Alternative medicine

    • Rainbow
      November 5, 2014 at 5:36 am

      Hello,

      I’m recovering from MFS. It’s been two years and the latest EMG still shows no activity in sensory nerves, although I have made quite some progress. I was hoping to get some info from members that have tried out any kind of alternative approach (meaning anything beside immunoglobulin treatment, physiotherapy and B complex). I’ve tried quite a few things, none of them had any big effect, but I don’t know how my recovery would go without them.
      This is my list:
      – Biotherapy (once a week for three months)
      – Bioresonancetherapy (for over a year, dealing with Candida, bacteria, amalgam…)
      – Acupuncture, including Chinese herbs (26 times)
      – food changes: green juices (all the time), got tested for food intolerance (showed wheat, cow milk), tried paleo diet for a month (I really didn’t like it), taking B complex and Omega 3 daily
      – Reflexotherapy of the feet (once a week for four months)
      – magnetotherapy pillow (2-3 times a day for three months)
      – Reconnection (three therapies)
      – getting a dog 🙂

      Please share your experience 🙂

    • Jim-LA
      November 5, 2014 at 7:44 pm

      I too have MFS. You can find some of my posts about my condition here: https://forum.gbs-cidp.org/topic/post-miller-fisher

      Some MFS sufferers have been helped by taking Alpha Lipoic Acid (ALA). This is a non-prescription dietary supplement that is available in the vitamin section of many stores. I use the following product and take 1200MG per day: http://www.supplementwarehouse.com/viewitem.asp?idproduct=162545

      A clinical trial was completed last year in Oregon to exam how ALA treats CIDP. We are still waiting for the researchers to post their findings here: http://clinicaltrials.gov/ct2/show/NCT00962429?term=lipoic+acid&rank=13

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